`Due to the priceless knowledge and support my family and I have been provided by you all over the last 7 months we were in a position @ the last Rhummy appointment to request a further consultation without my father post the initial consultation with him present (He feels uncomfortable when we question any professional in any way). At the time my farther had reduced from 50-40-30-20-15 without any significant set back and was instructed to drop to 12.5 the week after. He had not been on MET/Humeria for over six months and had no obvious R/A (initial diagnosis) or PMR (potential diagnosis) since August although he has been heavily fatigued for two months.
This appointment was a follow on from 2 weeks in hospital in the comfort of the infectious diseases wad were they treated him for sepsis (previous admission with tis infection), following the admission from his own GP. During the two weeks & multiple investigation no sepsis was found and numerous specialists commented that he is a mystery and presents himself as someone with potential vasculitis. This statement could not be supplemented with any data and all specialists informed us that it would be something that our Rhummy would discuss with us on the follow up appointment??
Anyhow the conclusion of the follow up was that they stated that he is one of 20% of the people who are admitted to infectious diseases unit, who presents with infections symptoms and extremely high CRP (170 on admission & 90 on release) but they cant find an infection. Note: No pain or R/A visual symptoms
INFECTION OF UKNOWN ORIGIN!! - Intrinsic inflammation disorder !! This was the new diagnosis provided during the consultation and he is one of the 20% who cant explain why the have high inflammation levels and are extremely fatigued and always unwell. and After saying no to the Humeria again we agreed to keep tampering with the steroids and monitor
1 week later we dropped to 12.5. This was over 8 days ago now and he has rapidly detreated to the pint were his legs wont enable him to get out of a chair or walk up stairs. Strangely this is without any significant pain only a bit in his groin area although he is fatigued as much as he as ever been before. We fitted a chair lift to get him up the stairs and will be taking out the bath shower for a walk in over the weekend. On top of all this he is now in the most depressed state I have seen and not really recognisable to our normally strong minded farther. We called the R/A nurse on Monday to inform that he has lost the leg movement and they informed us to go to his GP. They took his bloods again and informed us that we will need to see the Rhummy (Planned for this Tuesday)
Infection of unknown origin, has anyone ever been diagnosed as this?
what is the normal treatment if any?
Happy new year all, lets be strong for 2018!!