Nothing much to report πŸ‘: That’s good eh. Don’t... - PMRGCAuk

PMRGCAuk

21,642 membersβ€’41,047 posts

Nothing much to report πŸ‘

Rocketronzy profile image
β€’16 Replies

That’s good eh. Don’t think it is dry eye drops didn’t help,probably age and me abusing them. Never off tabs & phone for long.

I was wondering if it could be prednisone or Amitripoline πŸ€”

Main reason I came on line is How are you all keeping. Good I hope.

All the Best πŸ€πŸ€πŸ€

Ronzy

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Rocketronzy profile image
Rocketronzy
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16 Replies
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SheffieldJane profile image
SheffieldJane

I'm doing ok still stuck at 7 mgs. I wondered where you'd got too.

Best wishes Jane

Rocketronzy profile image
Rocketronzy

I’m down to 6 😬 not going s bad

Going t try 5 soon 😱

All the best πŸ€πŸ€πŸ€πŸ€

Rugger profile image
Rugger

I'm plodding on, thanks. Just tapering to 7mg, but in 0.5 drops this time, after my flare in the summer.

Sorry to hear the drops didn't help your eyes - I've just put some in mine when I woke up.

Rocketronzy profile image
Rocketronzyβ€’ in reply toRugger

Fine. I am down to 6 going to five soon 😬. All been well I’ll be there on the 12th.

There’s a train that gets in Ilkly at 12. 29. Is it near the station.

Take care. πŸŒΉπŸŒΉπŸ€πŸ€

Ron

Rugger profile image
Ruggerβ€’ in reply toRocketronzy

Perfect timing, Ronzy. The venue for the Ilkley meet up is only a 5 minute walk from the station.

Take care too.

BonnyQuine profile image
BonnyQuine

Hello Ronzy; glad to hear you're doing ok.

I'm doing ok too - on 9mg tapering to 8.5. Some low days, and still a bit knackered, but generally not too bad. I used to have v watery eyes too. Still do, but that has definitely improved as the pred dose has decreased. Eye screening on Tues was encouraging. Fingers crossed!

Good luck w 5mg.

Rocketronzy profile image
Rocketronzyβ€’ in reply toBonnyQuine

Thanks Bonny it’s probably down to pred

My eyes. Do you come down .5 a mouth.

Think I will have to slow down I’ll try 4.5 tonight. I’ll be glad now when I’m off pred.

Take care. πŸ€πŸ€πŸŒΉ

Ron.

Rugger profile image
Ruggerβ€’ in reply toRocketronzy

Ron, be careful with your reduction! You said you're on "6 going to 5 soon" and now you're saying 4.5mg. If you drop too quickly and have a flare, you'll have to increase the dose to who knows how much. What does PMRpro say? "It's not slow if it works" and "It's not a race to Club Zero"

You're the one who needs to have a care!

See you at the meet-up in Ilkley, all being well. (With hat in December weather!)

β€’ in reply toRugger

Ba'tat anytime

Rugger profile image
Ruggerβ€’ in reply to

I went on Ilkla Moor baht 'at one May Day Bank Holiday and went down with torticollis (wry neck) the next day! Birds get it too!! :-D

BonnyQuine profile image
BonnyQuineβ€’ in reply toRocketronzy

Hi Ronzy

I do come down by 0.5mg at a time, but rather than doing it by timing, I sort of 'fly by the seat of my pants'. Very slow and cautious.

I stay at a dose until I've felt ok on it for a while - less fatigue - and then I try coming down by more or less the Dead Slow Nearly Stop method, but 'playing it by ear' a bit. For example, if I've got anything on I'll stay at 9mg for an extra day or more: and if I'm having a quiet patch and feel ok, I'll go down to 8.5 for a day or two extra. Sometimes I try alternate days for a while. It takes weeks! Eventually I'll get to being on 8.5 all the time, and then will start the same process with 8.5 to 8mg.

If I feel really ill I might go up a mg for a few days.

It seems to work ok. The biggest problem is the fatigue, which I keep hoping will go away, but is taking its time and tends to get worse after a drop. Plan is to have another v quiet winter and then be noticeably fitter by next summer. As usual, fingers crossed.

You look after yourself.

Rocketronzy profile image
Rocketronzyβ€’ in reply toBonnyQuine

That’s great you must have a very tolerant Doctor.

Thanks for info.

All the bestπŸ€πŸ€πŸ€

And you.

Rocketronzy profile image
Rocketronzy

Thanks I’ll do that.

See you soon 😲 we’re doing what we tell our children not to do πŸ˜‚πŸ˜‚

Meeting strangers on the net.

I hope a grait big hairy bloke doesn’t come up and say hi am Ruggar. πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚

Sorry it’s me I do like a laugh.

All the best πŸ€πŸ€πŸ€πŸ€

Ron.

β€’ in reply toRocketronzy

πŸ˜‚πŸ˜‚πŸ˜‚

Rugger profile image
Ruggerβ€’ in reply toRocketronzy

Ron, you know I'm a rug-making 'bird'! (See above reply to Poopadoop re my Ilkla Moor experience.)

The torticollis resolved quicker than PMR.

Rocketronzy profile image
Rocketronzy

Yes I know.

At first I thought you was a man like Rugby players πŸ˜‚πŸ˜‚

Not coming Ba tat tho. πŸ˜²πŸ˜±πŸ˜‚πŸ˜‚

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