pred diffident or Arthritis. : terrible pains top... - PMRGCAuk

PMRGCAuk

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pred diffident or Arthritis.

Ronzy profile image
Ronzy
β€’11 Replies

terrible pains top of my arms. Pred moves it. Am I starving myself of pred.

begging to think so πŸ€·πŸ½β€β™‚οΈ I’ve bean taking pred now for 14 months this time

So I have come down from 40 ish to 8 now πŸ˜΅β€πŸ’« it’s a mine feild this pmr/ GCA.

what does anyone think πŸ«ƒπŸ»

Thanks folks πŸ€πŸ€πŸ€πŸ€πŸ€πŸ€πŸ€πŸ€πŸ€πŸ€πŸ€πŸ€πŸ€πŸ€πŸ€ all the best

Mistifyed. Ronzy

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Ronzy profile image
Ronzy
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11 Replies
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Ronzy profile image
Ronzy

should read pred difficent πŸ˜‚ hard word.

piglette profile image
piglette

Try increasing by 5mg for a week or so and see if things improve. You could probably drop back to 9mg if everything is OK and then drop back to 8mg when OK at 9mg.

Ronzy profile image
Ronzy in reply to piglette

Mm I’ll try that 😀 thanks nowt to lose

piglette profile image
piglette in reply to Ronzy

Good luck.

SheffieldJane profile image
SheffieldJane

It is a minefield and you do seem a bit low on Pred. See if Piglet’s suggestion works. Both arms are a bit of a red flag. Good luck. X

PMRpro profile image
PMRproAmbassador

Are you better on 9mg? If so take it!

Pixix profile image
Pixix

think you’ve got your answer, Ronzy! But I’d try just increasing a little, not a lot…one mg can make all the difference & im sure you don’t want to go right back up & start yet again to decrease! Shoulders are a sure sign for me that I’m OK, but not OK!! Good luck!

Ronzy profile image
Ronzy in reply to Pixix

thanks Pixix 🌹🌹

Ronzy profile image
Ronzy in reply to Ronzy

well second day feels much improved so far got thro some garden cleaning and clearing today felt really well πŸ•ΊπŸ½πŸ•ΊπŸ½ trying not to get too excited this time as we all know on pred it picks us up then kicks you back down. But must say my suspicions were right about flare. 😝 very little pain today in shoulders. And know pain killers. On a slight different note it seams to me all these Rummeis seem to know is tapper tapper. 🀯 .. this site is a god send 🀩πŸ€ͺ

All the very best to you all an thanks for all your concern and help πŸ₯°πŸ₯°and good luck

πŸ€πŸ€πŸ€πŸ€πŸ€πŸ€πŸ€πŸ€πŸ€πŸ€πŸ€πŸ€πŸ€πŸ€πŸ˜€πŸ€πŸ€πŸ€πŸ€πŸ€πŸ€πŸ€

Fortunada profile image
Fortunada

Be aware of any headaches and feeling very tired, unwell, very light fever or uncomfortable with light and sound as some end up with Giant Cell Arteritis GCA.

marionofnorwich profile image
marionofnorwich

Deficient?

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