PMRGCAuk
7,386 members12,122 posts

Introductory message

Hello, I've just joined the group today although I've had problems which took a while to be confirmed as PMR in May this year. Now down to 13mg prednisolone a day. Life is very much back to what it was this time last year when the pains began. This means I'm physically active and spend as little time as possible in doors. I live in the north east of England, am 68 years old and retired - from paid employment at least as I volunteer with a couple of local groups.

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This sounds amazing xsifter 15, if I am reading your past correctly. What was your starting dose of Pred. ?

Four months is a really short time to become a fully functioning you with this disease!

If it ain't broke don't fix it! Long may it continue.

Welcome! If this is your first post!

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I started on 15mg a day in early May. Maybe it is an exaggeration to say fully functioning! Yesterday I split and barrowed 2 loads of logs and cleaned 2 upstairs sash windows. Today I have one sore shoulder and generally feel a bit achy. Prior to PMR that would have been a normal if busy day. As I reduce the daily dose of pred I think I need to be more aware of how my system responds to exercise. And not too impatient with myself!

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Good, pleased to hear it. And volunteering gives you as much as you give to others - well done. My ‘give back’ to society is this site which is obviously done indoors, but I make sure I’m out somewhere every morning to meet others and just enjoy the fact I can!

Take care.

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We really appreciate everything you give back to others through this site DorsetLady. Long may you continue contributing and offering sound advice, support, encouragement and friendship to others in their time of need.

We love the banter and fun you and our other favourite "auntie" and "uncle" generate! It brings a smile to our faces. 😄

Keep up the good work! 😊

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Thank you.

Well I can’t run a marathon to raise funds for charity - don’t know that I ever could, but I can be an “auntie” - think 20plus years of being an Army wife helped with that. In the days pre Facebook, mobile phones and no Mum to hand some of the younger wives needed a shoulder to cry on - and I’ve always had broad shoulders.

And as they say - what goes round, comes round - we’ve all been there.

Take care.

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I bet the army wives appreciated your broad shoulders. We certainly do!😄

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As a recipient of your giving back on this site, I say Thank You very much! Couldn’t do it without you!

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You have a local charity and two excellent support groups, one in Gateshead and one in Middlesborough:

pmr-gca-northeast.org.uk/

Do contact them.

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Thanks, I will keep an eye on what is happening locally. With a background in university science I have already offered to be part of a research study on GCA.

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