Problems accessing site: I have had pmr for three... - PMRGCAuk

PMRGCAuk

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Problems accessing site

Valeriebee profile image
10 Replies

I have had pmr for three and a half years and using the DSNS method am now dropping from 5 to 4.5mg pred. after trying to get below this magic number twice before. I have a good GP and a very supportive Rheumy so am very lucky.

I am very grateful for all the good advice given on this site so was very concerned when I stopped receiving posts last week and could not reconnect. I have rejoined with a different username as over the years have learned so much and want to continue to be a member of the community.

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Valeriebee profile image
Valeriebee
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10 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Hi Valeriebee,

Pleased to hear you're doing well.

I think many of us have had troubles with the site at some time or other for no apparent reason. Sometimes the glitch is their end, sometimes ours, sometimes - who knows! But very frustrating it can be!

Glad you're back.

Valeriebee profile image
Valeriebee in reply to DorsetLady

Thank you DorsetLady, and thank you for your helpful contributions. I cannot pretend my years with pmr have not been bumpy at times, which is why I so value this site. Someone else always seems to ask 'my' question before I get around to it - it is good to know one is not alone.

EdithWales profile image
EdithWales

Hi Valeriebee

I too am on 5 to 4.5 using Dorset Lady's guide. I too have had problems being locked out and signing on with a different name. However if you contact the IT technicians at Healthunlocked you will find them very helpful and they will sort it out. Don't want to be lost, I felt bereft when I couldn't get to my friends

Good Luck

Valeriebee profile image
Valeriebee

Thank you EdithWales for your advice. I am 79 and I hanging on by my fingertips to modern technology but don't like to be beaten!

Hi Valeriebee,

Welcome back, I too had some problems using the forum due to my own fault. I was listed as PeTee70 but now I am Pastit if you see what I mean 😀 and yes I agree with you "I have learned so much" from some wonderful members who I now feel are friends ☺️

nevagivup profile image
nevagivup

I've been seeing this method called DSNS mentioned several times, but am not sure what it actually means? I gather it is a method/pattern of reducing Pred, but it would be helpful to know.

Valeriebee profile image
Valeriebee in reply to nevagivup

I believe there are several different methods of tapering but the one I use is : -- 6 days current or 'old" dose, I day new dose / 5 days old dose, 1 day new dose / 4 days old dose, 1 day new dose, and so on. When you get to 6 days new dose it then becomes the 'old ' dose and you start the next reduction.

I am sure someone else will be along to explain things more clearly or to give alternative methods, but I hope this helps.

PMRpro profile image
PMRproAmbassador in reply to nevagivup

Dead Slow and Nearly Stop.

healthunlocked.com/pmrgcauk...

This post explains it all - why and how.

Valeriebee profile image
Valeriebee in reply to PMRpro

Thank you.

nevagivup profile image
nevagivup in reply to PMRpro

Thank you PMRpro. Much appreciated. I've printed your description so I can have it to refer to again and again, if necessary.

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