reducing prednisone and flares: i am curious as to... - PMRGCAuk

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reducing prednisone and flares

arvine profile image
6 Replies

i am curious as to when you reduce dosage, ie, been reducing now reg and down to 10 mg from 12.5 this is the 5th day now , and am planning a little travelling, but don,t want to have any problems while doing that, i was diagnosed last oct, 2016 and started at 40, first drops were fairly quick, but by nov 1 was down to 20, there for almost 3 mos, than jan, down to 17.5, until apr 8th down to 15, then on that until may 3rd then on 12.5 until 5 days ago, apart from some discomfort shoulders, buttocks hamstrings, have been doing fairly well, now at 10, hoping that continues for me,

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arvine profile image
arvine
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piglette profile image
piglette

Hi Arvine, I think now you have got to 10mg I would not reduce more than once a month. I reduce half a mg a month, although some brave people go for 1mg. Under 10mg you do need to take it more slowly.

arvine profile image
arvine in reply topiglette

thanks piglette, i think my rheumy suggests if all is well go down another 2.5 in july, but i will discuss with her

piglette profile image
piglette in reply toarvine

A lot of these rheumie are very trigger happy, they don't have to do the reduction!

PMRandRA profile image
PMRandRA in reply topiglette

And it has been suggested that we should stick on 10mg for a year. That's what I intend to do this time. S*d the doctor telling me it's too slow! It isn't his PMR its mine and I've yo yo'd 6 times now. !

PMRandRA profile image
PMRandRA in reply topiglette

I will go the very very slow route this time. Ie:

After the year on 10:

10,9,10,10,10,10,10,9,10,10,10,10,9,10,10,10,9,10,10,9,10,9,10,9,10,9,10,9,10,

9,10,9,9,10,9,9,9,10,9,9,9,9,10,9,9,9,9,9,10,9,9,9,9,9, for a month. Then do the same with 8,9 etc.

As long as pain is very bearable or none - hopefully.

xxxx

suziq123 profile image
suziq123

This is the same sort. I of reduction I was in and found once I got to 15, 12.5 was too much so I did 1mg every 2 to 3 weeks as long as I was feeling well. This for me was defined by a bit of morning stiffness (I mean a BIT) and essentially pain free through the day. I keep going back to " if pain returns gi back to the dose where pain was under control". I tried to be tough and work through the pain and it just wasn't worth it, and decided it couldn't be good either. Good luck with it. Remember a Marathon not a Sprint.

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