Hi, as many of you may recall, I have been having pain in my Temples which is a constant nagging pain but not severe. I also started having cramp pains in my jaw associated with chewing, these are extremely uncomfortable, but resolve shortly after chewing. Discussed with Rheumy 3 weeks ago, who said she found it impossible to believe I would be that unfortunate to have atypical PMR and atypical GCA, She suggested I "plodded on" with 9mgs of Pred. Since seeing her I now have tingling sensation in my tongue that occurs at night keeping me awake, or i wake up early with the tingling. I then over Easter weekend, developed a small haemorrage in left eye, which A+E said was not associated with my PMR.
Have been reducing dose of Pred over the week, alternating 8/9/8/9/8/9/8 as rheumy suggested. This morning woke to temple pain a lot worse, bloodshot eyes and tingling tongue. Went to see a GP at my surgery, not the one I usually see. He has told me to continue on 9mgs for now, even though I was having all these symptoms when at 9. Tells me it cant be GCA, never even examined me to make that decision. I am desperate to know what is causing all of this, all he could offer was "facial pains". Because I am only 47, and my bloods are always normal, everyone seems quick to dismiss GCA. I don't know where to go from here, have booked to see GP who initially diagnosed PMR next Mon, but getting scared as time goes on, its now 5 weeks its been going on.