It is quite a while since l posted on this site but some of you will remember me l hope.
I have had PMR/GCA for over three years now and am now down to 7 mg of pred which l have remained on for several months.
15 months ago l had an MRI scan to investigate lower back pain with numbness and electric shock symptoms going down my legs, they found a shwanoma tumour in my lumbar spine which was about the size of baked bean, it Is now the size of a walnut and still growing and my neurologist at Addenbrookes is keen to operate on me to remove it, he has written to me advising that growing at its current rate it will eventually cause compression to the cauda equina with paralysis of legs, bladder and bowel.
The complicating factor is that l had a heart attack on December 28th followed by a diognosis of pulmonary embolism so l am now taking warfarin and ticagrelor (an anti platelet drug) and l will have to stop both a few days before the operation to prevent me from having a serious bleed.
Believe it or not l look quite well and as my aunt used to say before she died aged 102 a year ago, your looks don,t pity you Micheal to look at me you would not guess that l had so much going on. Anyway to bring me back to the reason l contacted yourselves, having addressed the more serious issues of stopping the blood thinning meds l am not sure now if l have to stop the stoeroids as l am worried that l will have a flair up of my PMR/GCA does anyone have experience of having an operation whilst on steroids?