Is anemia part of the diagnosis of PMR? - PMRGCAuk

PMRGCAuk

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Is anemia part of the diagnosis of PMR?

nymima01 profile image
8 Replies

Hello All - I was recently diagnosed with PMR by a rheumatologist and was put on 20 mgs. daily of prednisone. I am feeling much better and most of my awful fatigue is diminished thanks to the medication. I was also recently diagnosed with anemia by my PCP. My latest numbers for iron is 9.4. Six months ago I was at >12. I seem to be dropping .2 pts. every 2-3 weeks or so. I don't have any internal bleeding that I can see, and I go for a colonoscopy every 3 yrs. I am due for one the end of next year. I have already received my protocol for weaning down on the prednisone and this should take me to the end of Oct. 2017. I thought I had read about others who mentioned anemia on this site too. My PCP doesn't seem too concerned about it for now, and in fact I will do blood work for him again on Jan 9th 2017. But my main complaint before I was diagnosed with PMR was extreme fatigue, and although the prednisone has taken care of that pretty much, I am getting more fatigued due to the drop in my iron. Any thoughts??

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8 Replies
TooSore profile image
TooSore

I do not have any issues with my iron, but fatigue is an issue that shifts and changes over time. What are you to do about the anemia. Diet changes?

nymima01 profile image
nymima01 in reply toTooSore

Never had a problem with anemia. I am concerned because I take iron as prescribed by my doctor, I eat iron-enriched foods and nothing seems to be helping. I feel it happened when the symptoms of PMR started. Like the same time - and I can play medical detective and notice the drop when my PMR symptoms started to become overwhelming. My PCP felt that the fatigue I had at that time was not equal to the amount of anemia I had going on - which was 10 at the time my extreme fatigue started. So he sent me to a neuro and a rheumy for tests. Kind of puzzling. Never took iron in my life before this.

in reply tonymima01

I developed anemia after I had been diagnosed with Polymyalgia. My GP noticed it initially when I had a blood test, but he didn't do anything about it until I was admitted to hospital with cellulitis. The doctors there were not happy about it and gave me a couple of blood transfusions. When I came out of hospital my GP put me on iron tablets and sent me for a colonoscopy and a Gastroscopy, he was worried about the cause of my anemia. The tests didn't reveal anything nasty. Gradually I felt much better, no longer really tired. I have now stopped taking iron tablets, I probably took them for about six months and my blood count is ok now.

I looked into causes etc for anemia and apparently it can be associated with illnesses such as Polymyalgia although it doesn't seem to be that common.

PMRpro profile image
PMRproAmbassador

Mild anaemia is a common symptom of autoimmune illness and is found fairly often in PMR. But severe and continuing anaemia isn't usual - and could suggest you don't have "just" the PMR we are usually talking about. It's the usual confounder: PMR is not the illness itself, it is the name given to an underlying illness. In our case it is generally an autoimmune vasculitis (inflamed blood vessels) but there are a lot of things that can cause PMR symptoms - and there is nothing to stop you having two different things going on at the same time. I would be wanting my PCP to look a bit wider...

SusanEleven profile image
SusanEleven

I was anemic when first diagnosed with PMR and continued to be for about the first 6 months of blood tests. I didn't take iron pills but developed an intense craving for meat and baked beans! The craving lasted for a few weeks and I indulged. I was no longer anemic at last round of blood work.

It had been mentioned to me that there is an "anemia of chronic disease and inflammation."

Sallyaches profile image
Sallyaches

I have been chronically anemic since having PMR, my haemoglobin has hovered around 10.00. I take iron 3 times a day without significant improvement. I was told it was the anaemia of chronic ill health, which cheered me up no end. I am just hoping when my PMR improves so will the anaemia.

SusanEleven profile image
SusanEleven in reply toSallyaches

I think I read somewhere that when it's the anemia from chronic ill health the pills don't help.

nymima01 profile image
nymima01

I just did blood work this week for the anemia to see where I stand. My PCP does not seem overly concerned about it - it actually dropped another .2% a little over 2 weeks ago when I had b/w done for another doctor. I called him about my concerns. But I suppose he will address this with his b/w test results when I see him next week. I am feeling more tired, as I am in the weaning down process with my prednisone protocol. So I am concerned and don't want to go back to that awful fatigue I had before my diagnosis of PMR. I have the most awful leg cramps going on too! They get me every morning!

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