Having reached 0 pred after 2 years and 4 months of it's helping and having just had my 64th birthday I reflect that the month I managed without was very interesting with aches coming from random places almost every day and the most itchy skin blodges over my upper torso. However my last week was tortuous with the effort of standing becoming harder each day and my shoulders restricted in their movement. I thought my PMR had gone and really felt a sense of achievement when I stopped the pred. I hate pred and the evil taste of it. the two years the stuff has been in my body I guess that I have reached a love hate relationship with it. It allows me to play golf and to work but seems to nibble away at my skin and bones making me take all kinds of supplements to prevent further deterioration.
The repair for my unbelievable aching that stopped the aches going further was 5mg of pred. Every pain killer that had given relief stopped giving any and it became apparent that I was deluding myself it had gone. Back to bringing under control and stabilising before working out the reduction plan. I thought I had brought myself off slowly enough but despite change of diet it seemed obvious that my adrenal system wasn't kicking in. After a chat over the PMR helpline and the promise to send me a copy of a withdrawal plan I look forward to a more successful pred removal.
Onwards an Upwards and don't let it beat you!