I started on 15mg of pred on Dec 30th, prescribed by my GP after three months of being told it was my age but getting gradually worse daily. I had a self funded rheumatologist appointment on Jan 2nd and he agreed it was PMR and said to taper to 12.5 after a month. My CRP/ ESR were 53 and 71.
On Jan 2nd I was asked how much better I felt and it was 60%. I took 2 doses of alendronic acid, as prescribed by my GP, but I have stopped as I felt worse. I am self funding a DEXA scan but no date for this yet. Further blood tests 6th Feb.
After19 days on 15mg of pred, my legs are less painful and the swelling has gone away. I am still having some problems in a morning climbing stairs, but nowhere near as bad as pre diagnosis. Two and a half hours after taking my pref I am stiff after sutting. I am back to walking every day outside without the need for a stick.
My upper arms, shoulders, neck and top of my back are still very weak and painful. My GP referred me for NHS physio and I wonder if the posture exercises I have been given to do are exacibating the pain. A full kettle is still too much to lift. Three dinner plates on a high shelf also too heavy to lift down.
Should I just carry on talking 15mg and taper as prescribed? Should I contact my GP in the hope of getting an appointment? I paid to see the the consultant myself , should I email his secretary for advice?
The rheumatologist did say that having looked back at years of blood tests, the differential diagnosis may be sero negative arthritis linked to Crohns disease which I've had for 52 years ( no current symptoms).
Any suggestions very gratefully recieved. Thanks.