I have GCA/PMR. Last Thursday, I had my 2nd infusion of Acterma, a medication to hopefully enable me to decrease the Prednisone 40mg. I have been on this dosage since June.
Yesterday, I awakened to swelling/edema in both ankles. Today, I had swelling in both forearms. Also, my vision has been affected the past few days, very difficult to read and some blurred vision. I also have glaucoma.
After talking with our advice nurse who talked with an ER doctor, I was instructed to go to the Emergency Room. It was a frustrating visit. The attending physician was not familiar with Acterma. He ordered a lot of lab tests, EKG, and UA. Two hours later, he told me all the tests were normal.
While waiting for the test results, the ER doc called my rheumatologist. She then talked with me and said it was difficult to know if the swelling is from the Acterma or the Prednisone. She encouraged me to increase the Prednisone back to 40mg (I had decreased my Prednisone to 35 mg the past 3 weeks.) I will be seeing her within the next 2 weeks. I was so glad to be able to speak with my rheumatologist.
I also will need an appointment with the ophthalmologist ASAP for the vision changes. I have glaucoma, too.
The ER staff said they don't see many people in the ER for rheumatology problems. I felt discouraged upon leaving the hospital.
Have any of you every had swelling/edema in your ankles or arms from the Prednisone. My rheumatologist feels these symptoms may be from the Prednisone.
I need to get some sleep, as I'm up between 3-5am with palpitations, headaches, etc.
Thanks for bearing with me in this long post. Any comments or personal experiences will be much appreciated.