This has been the most difficult week since I was diagnosed with GCA/PMR. The GCA diagnosis was in July while I was on 40mg of Prednisone. I had some visual changes in my left eye. After that, my Prednisone was raised to 60mg.
Since then, I have also been taking Mehtotrexate, now weekly injections. I also have glaucoma, and the intaocular pressure was rising to dangerous levels.
At this point, I am taking 30mg of Prednisone. Anyway, after helping my daughter and her family for 2 weeks, I experienced a severe headache in the frontal area, and explosive headache/pain on the top of my head. This headache continued every day, with some relief with Norco. I also had some temporal pain.
After having a CT scan of my head which was normal, and many lab tests, I experienced one day of a fever. My ESR had gone from a normal range to 55, and my CRP had gone from a normal range to 4.5 in one month.
My rheumatologist, neurologist, and GP all felt I needed to go to the Emergency Room to be evaluated for possible meningitis. So, yesterday, I spent the entire day in the ER. Meningtis was ruled out after a spinal tap. The ER doctor was wonderful, and also gave me IV pain meds. which helped the headache, olue 3 liters of IV fluids. He talked with my rheumatologist, who then talked with me that perhaps this is a GCA flare up. We decided to raise the Prednisone to 40mg for now.
The headache is much improved today, but I am exhausted and weak from all the paiin.
I feel rather like a wet noodle that has been flung at the cupboard once to many times to see if it is done!
Have any of you experienced these kind of headaches or some other symptoms of GCA while still on fairly high doses of Prednisone? I certainly don't want to experience this kind of situation again if possible.
My husband and I are travelling to Philadelphia and Annapolis next week for a wedding he is officiating. We will be going on the plane. We have known the bride since she was born. I'm just going to have to be very careful, and rest when I can.
Thanks for bearing with my lengthy post. Even the doctors have been mystiied exactly what is going on. I appreciate all of you so very much.