Fizzing

[Deeroy2015]

Hi all

This feeling in feet and ankles and sometimes bits of the body and back of the head,which I can only describe as like fizzy lemonade. Am still on 15 mg

What is it ? Is it the PMR or is it the pred ?

Can you enlighten me please.

Thank you in advance

Best wishes

[PMRpro Ambassador]

i have to say I don't recognise that sort of sensation. I DO get a feeling like electric shocks, mostly just before a sensation of warmth spreads over me. But fizzy lemonade - no, can't place that.

[bowler]

Could it be pins and needles ? a tingling rather than fizzing !

[Deeroy2015 in reply to bowler]

Not sure really,it's odd,it could be pins and needles but is it the disease

Or is it the steroids ?.

Best wishes

[bowler in reply to Deeroy2015]

I have GCA, and often get tingling/pins and needles in my hands and feet/head. As GCA is a form of vasculitis it could be associated with the disease. I also sometimes get a mild electric shock feeling in my legs.

I do have some other health issues that could cause my pins/needles/tingling ,but wont confuse you with them, as they are unrelated to my GCA

[Deeroy2015]

Thanks for the reply Bowler

I have GCA 'tendencies' whatever that may mean !

Perhaps the sensation in feet and back of head is part of the disease. Who knows its a minefield.

Wish you well

[NursePeggy]

I was diagnosed with PMR in September 2014 and am now on 8 mg pred. I have a tingling/pins and needles primarily in my feet and legs almost permanently, which could also be described as fizzing as it is so intense. I also sometimes have it going up my body and sometimes in my lips and head. I dont know if it is pMR or pred. I thought it may have been another med I was on, but I have been off that for a few weeks now and still have it. My legs are fizzing at the moment and it is 6.15 am and I am sitting up in bed writing this. It varies in intensity, sometimes so strong it is almost painful. Sometimes gets worse after walking.

If it is very bad I rub them for a bit which seems to relieve it for a while.

[Deeroy2015]

Thanks jan24

I don't have it as badly as you,but I am on 15mg still. Walking appears to relieve the feet a bit ,but there we go,everybody seems to be affected in different ways.

Wishing you better.

[maria40]

I got a tingling sensation at the back of my head, sometimes extending right down my spine at the beginning of my last GCA flare. I would check this out with your GP to be sure.

[Ellie135]

Just a quick note, I've had to come off pred for a while but I'm suffering more with the "fizzing" feet and leg's, so probably down to PMR. Aren't we blessed.....not.

[piglette]

I get a sort of fizzing in my legs and down my back. It has been going on for a while, I am not sure if it is PMR, pred or something else. In the summer I thought it would improve as I thought it may be something to do with it being colder, but it did not really make any difference. I am particularly aware of it in bed. I am glad I am not the only one with fizzy feet!

[Deeroy2015]

Perhaps we could form a duo called the ' Fizzy footers' ha ha

Thanks for the post.

Wishing you well

[Gtgirl]

I have had exactly the same. It only effected my lower legs and feet, and yes i too can only describe it as fizzing, like soda, very different to pins and needles. Not painful as such for me just very uncomfortable and irritating. I used to find mine worse when resting sitting with my feet up or in bed. If I was walking around it was ok. I had it a lot in the early days and did seem much worse on the days I had done "too much", Dr totally disinterested in my fizzy feet/legs symptom!

I am reducing Pred and now down to 3mg after 18months. I feel the fizzing maybe due to reducing the dose and my body adjusting. As more recently I have definitely found a pattern of the fizzing reappearing intermittently for about 48 hrs within a few days of reducing Pred (0.5 mg at a time) and then totally going away again, of course it maybe coincidence. At first I thought maybe the Pred dose was too low but it doesn't seem to be. Now I don't get concerned as I know it will soon be gone, fingers crossed of course!

I'm afraid I don't know the answer to whether it's PMR or the Pred but I do know this symptom and understand what you are going through! Take care

[Deeroy2015 in reply to Gtgirl]

Thanks so much for this reply. Those symptoms are as I get them and can only describe as 'fizzing'.but mine at the moment in my feet does not go away,but then am still on 15mg due to my head.

So just have to persevere and do reducing very slowly

Wishing you well

[Craftnut68]

Hi Deeroy I too experience a tingly feeling on the back of my head which I have had for well over two years. I was diagnosed with PMR at beg November and possible gca as I lost a bit of peripheral vision. After biopsy for temporal arteritis I was told no gca but I have felt this tingly feeling has got worse over past two weeks. Doc today could not really give explanation for it but assures me I don't have gca as I display no other symptoms of it . It worries me greatly and I can't just ignore its there it seems to dominate my life now as well as other steroid related problems. Hope this helps to let you know you are not alone with these symptoms

[Deeroy2015]

Thank you for your reply.

I too had biopsy which was negative, but these appear to be almost a waste of time as it depends where the cells are at the time.

I understand the domination you feel of these steroids,as they seem to create other problems. But hey onward and upward.

Thank you for sharing and I wish you well😀