jinasc has just sent me this link - so I decided you should all get to hear one of the most realistic experts in the PMR field talk about it. Listen to the video:
news-medical.net/health/Wha...
jinasc and I both LOVE this man 
This is also worth it too:
youtube.com/watch?v=TOdss3s...
Sorry about the video bit - there is a hard copy version available apparently. But you can listen and read the slides if you can ignore the zooming picture!!!
Is that the entire talk, it only lasted 2 mins and I didn't feel he had finished?
I did a quick look on YouTube to see if longer version....no it's 1.58mins but there are more bits of him.
youtube.com/playlist?list=P...
We must have been there at the same time ...
I have just started this. I may try it as a sleep aid tonight. But subject looks relevant.
Thanks for finding that. See what you mean about a sleep aid, from what you have been saying of late it could be very useful to you!
I am looking for....ward....to.....falling...a...sleep to.....nightzzzxxzxx
I posted it in the main post before you did. Appalling delivery - but useful enough if you can ignore the zooming camera. Some of the summary slides were really useful I thought for potential other things to be ruled out and possible symptoms.
Yes I suspect I will watch the rest of it for the slides rather than the delivery.
There are a couple of GCA by different people but may be useful - they are attached to the playlist I posted. Bite sized chunks.
Aaaah. He is in Minnesota. Makes sense.
A really good summary and short enough for family and friends!
Thanks to you both.
I'll try the longer one later!
Thankyou for both posts-my Sunday morning in bed taken care of! What is he referring to when he says A/C and WRS levels need to be checked?
WSR is Westergren sed rate or ESR, a/c I think is actually Hba1c for monitoring progression towards steroid induced diabetes
Thank you!
I scrolled through the slides. Lots of good points.
Watched the first older man talking, and I must be going mad..(no comment) but he didn`t once mention pain!....but must admit the film cut off before it finished....so maybe he did later?
Actually now you mention it....
Possibly - but we can't find a fuller version of it infortunately. The article mentions pain though. And so does the next video in the series in the second:
youtube.com/watch?v=GVdSImy...
Felt right at home with that accent - French Canadian.
Is that what it is?
Heard the accent but didn't know where from. Talking of being at home....a home visit by Dr!
We get them too!!
Omg. I am not sure my surgery remember them. Just looked. They do but you have to be elderly, disabled or terminally ill. Even then no guarantee of same day visit. Have to be ill before 10.30.
Claudia goes to see all her chronically ill patients regularly - really quite old-fashined really.
A friend who is over 80, lived on the edge of the city for 40plus years (nice area) and has always had drs visiting (to drink whiskey with her hubby) up to 5 years ago. She gets grumpy because the surgery she goes to now are reluctant to visit. But she had vets and all the handy men too for 40plus years. When I had herniated discs I literally had to crawl to the car and lay on my stomach cos I couldn't turn. A friend drive me to surgery and I crawled on hands and knees into the surgery. Asked to lay down. And that was more than once and was the same for half a dozen hospital visits for x-rays MRIs etc.
That sounds awful.
I am a member of the Weisses Kreuz (White Cross) who provide a lot of the regional ambulance service here - and that entitles me to 6 free ambulance transfers if I can't use public transport/car. If it is medically necessary it is free anyway.
At least its a fair exchange of services that benefits all.
In the end it was easier to go to the surgery than have the, 'cant you come to the surgery' discussion.
What do you mean, cut off? I noticed at one point the transcript stopped moving, and the film had frozen. (I'd silenced it.) Just moved it along and it continued. There's a bit of a Q & A in the last few minutes although some of the later questions are inaudible.
He did emphasize how completely disabled the patient had been, and acknowledged he hadn't made this clear in his presentation.
I am going mad then...only saw the film with older man just standing there, lost interest on the slow one, amazed his audience kept awake!......will look further thanks.....
No - not going mad, Eric Matteson didn't mention the word pain, it was in the surrounding article. The second link with the appalling delivery had useful info in it or I wouldn't have bothered with it. This last link I have given you is good - because not only does it menton the pain and the disability but it also says it does not HAVE to be evenly bilateral and shows the difference before and after pred,
I have been rooting around trying to stay awake...hope it's ok to add this one about mxt and coffee....
Also wonder if she had had that old shingles shot.
Thanks PMRpro - I love the real and unusual attention to detail here even if the delivery style is as boring as (excuse me) 'bats**t' (LOL) - although he did attempt that wee joke. I also loved the bit about the higher the fees for those doctors proposing that diet - the higher the 'placebo effect' !!! Excellent info for differential diagnosing - wish my doctor had had knowledge of at least one of those slides I may then have got a diagnosis sooner and then (who knows) may not have developed GCA - but I realise that is controversial. The other thing I took notice of as it is not often discussed even here - is the initial swelling of hands and feet. I now recall this was the very FIRST strange and inexplicable symptom I had. The swollen ankles feet and hands seem to emerge from 'nowhere' and preceded any PMR pain or any other 'constitutional' or other symptom. This swelling did not persist however (even pre-Pred) as I moved further into the disease. I was not however diagnosed until about a year after this - first with PMR and then a few weeks later with GCA.
Thanks again
Rimmy
I love him....he helped me get to sleep last nite...😉
Whoops...as a sleep aid not that he was here...that would be a snoozefest.
I do mention RS3PE a lot - that causes hands and feet to swell and is often part of PMR. If he was in my research team he'd been sent for education - though to be fair, having such comprehensive slides was quite a useful approach for us!
My hands and feet swelling and hurting was definitely an early part of PMR. I couldn't do My little fiddly jobs at all and if I tried my hands swelled and hurt more.
Right now I wish he was my doctor thinking of showing this to my ignorant doctor who sent me to physio I am worse now, and this morning could not get out of bed
Was that yesterday? After external manipulation by physio or masseuse it Always gets worse before it gets better for me. It's like they release more gunk into your body that's been trapped- that's the technical term. Feel better!😁🌻
I found it interesting he mentioned "constipation or change in stools". Presumably this is a symptom. I have been trying to find a connection as I am now hav8ng to have a Sygmoidoscopy.
Great video, thanks for sharing!
Without a search facility this was a devil to find...of course then I realised I could have looked at your profile page. Doh.
There are a lot of new members and I wondered if while I was just having a look and a listen checking some things, I might bump it up too with this message.
Pp No reply required.
PMR - update on doctor call
Looking for short video on PMR