Hi Everyone, Sorry for the length of this first post but am a worried newbie looking for advice. Until last week I had never heard of GCA but after a number of occasions over recent months where I woke with loss of vision in my right eye ( which my optician was unconcerned about) I suddenly developed headaches over the sides and back of a my head, feelings of pressure in my head, neck pain, a very tender scalp and inner ear pain, extreme fatigue and feeling very unwell . Consulted GP who did ESR blood test which was 30. He started me on 30mg of pred and told me he would request a temporal artery biopsy. Two days later I woke and could see nothing at all out of my right eye. I was absolutely terrified but the vision returned to normal within about 30 seconds. I called the GP and was told to go straight to A & E. I was referred same day to ophthalmology where the dose of pred was doubled to 60mg and more blood tests done. ESR was 22 and CRP 9. I saw 3 different eye doctors who said they were challenged as I was too young to have GCA ( I am 51) and my blood results were not abnormal. However since researching as much as I can on web I have come across cases of people younger than me with confirmed GCA and have also read that these blood tests are not always reliable indicators of the condition. They are now referring me to rheumatology to consider whether it is worth carrying out a temporal artery biopsy as they say they believe this will be normal. They are also sending me for a scan of my carotid artery. I have experienced improvement of symptoms since starting the pred, the scalp tenderness and headache have gone but still some feelings of pressure in head and ear pain. I have not had any more visual disturbances.
I'm hoping someone could advise me how soon should I expect the other symptoms to ease, whether the drop in the ESR result after starting pred tends to confirm the suspicion of GCA and what to expect from a temporal artery biopsy.