Hello to all your dear folk
Just to say that histology concluded that I did not have GCA - I am so grateful to report this & mindful that this could change in the future.
Have now successfully reduced high dose of hydrocortisone to my normal daily dose of 15mg x 2 = 30mg.
What a relief & feel for those who maintain high doses for longer periods of time.
The procedure has knocked me sideways & really hope & pray that I will feel more human sooner rather than later.
They didn't use adrenaline as previously mentioned in my original post so bleeding was an issue for a time.
What I can say is that the higher dose of hydrocortisone aggravated my night cramps to the veins in my legs that had been ablated this year - back to wearing hosiery support at night as cramps severe enough for me to want to faint with pain & vomit at the same time when leaping out of bed.
Settling down with hosiery support so now sleeping reasonably through the night.
Pleased to say healing well where incision is but definitely don't feel at all well some days.
My head just doesn't feel connected to my body, my legs are heavy some days & nerves feel terribly shaky.
I seem to have one reasonable day & get few small chores done (at home) & maybe a little gardening if have energy - next day I am wiped out.
Have appointment to see my Cardiologist to check breathing/rhythm issues/occasional breathlessness 3 weeks from now.
My Rheumy suggested that I could look at tapering & his system:- once a fortnight drop 5mg, so 15mg morning and 10mg at night - do this each fortnight.
Decided I am not going to think about tapering until I feel more able to cope.
I have never felt so fragile but know that with each passing day I will improve and get stronger.
My Optometrist told me it takes 6 months to recover from a temporal artery biopsy.
Can anyone make comments on this please as that seems a long time to me.
Kindest regards and abundant blessings to you all once more.