I was diagnosed with PMR 3 years ago at age of 51 and reckon I had it for a year before that. Just been to see a rheumatologist as have been on Pred 3 years and have tried several times over last 18 months to get below 5mg, without success. Each time I tried a very slow tapering approach to get below 5 mg as people have advocated on here and it still didn't work. After last attempt to go to 4.5 which resulted in symptoms returning with a vengeance I went back up to 7.5 and it stabilised again. Fed up of this yo-yoing I wanted specialist advice, which my GP readily agreed to as he was stumped. To my shock the rheumy says it can't possibly be PMR because I'm too young. Symptoms seem/seemed like PMR, responded to Pred, so GP convinced it was/is PMR. Rheumy says it must be fibromyalgia, but surely then I wouldn't have responded to Pred? And symptoms were classic, unbearably stiff and painful shoulders and hips in particular. So now what? Who is right? Should I seek a second opinion? I guess he is the expert, but I'd like to know if you can get PMR in your 50s. I'm at the stage where I don't care whether it is PMR or not I just want to get off steroids.
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