I am a 49year old and for just under 3 years I have had PMR. Have been diagnosed and treated since Dec 2012. 3 Consultants have agreed the diagnosis of PMR. However the Rheumy I was seeing left at the start of the year, and I was transferred to the care of another new Consultant, this Rheumy has never examined me, just looked at my age on screen and decided I can't have Atypical PMR, he reluctantly treats it because his previous senior agreed the diagnosis. He keeps pushing me to reduce Pred, having started Azathioprine in Feb I am down to 4.5mgs. When I was at 6mgs i seen him as I started getting relentless cramp in right arm and vertigo, associated with reduction of Pred, he suggested we just stop Pred, I gave him a resounding NO. I should add for the last 18 months I have had GCA symptoms despite normal bloods and negative biopsy. The symptoms include jaw cramping, temple burning, tongue pain & spasms, head pains with tenderness to touch. All Consultants are reluctant to diagnose GCA under these circumstances.
My concern in the last 2 months have started having pain and stiffness in fingers and feet, GP says it is definitely rheumatoid, took bloods for Rheumatoid Factor and ANA, and told he to inform Rheumy. I picture him jumping through hoops and changing diagnosis to Rheumatoid Arthritis, however in view of the above I still feel I have PMR and possible R.A in addition. I would appreciate your thoughts before I see him. I am reluctant to stop Pred when I still have symptoms characteristic of GCA. Would it be worth asking for referral to a specialised Vasculitis clinic? Thanks, Runrig x