My Rheumy has suggested that it is probable that my adrenals have packed up by now and I will have to take steroids for the rest of my life- great! I'm not sure I can believe this as I have never yet got down to a low enough rate, I think to even test them out . I have been on Pred. for 14 months, nearly all that time between 9mgs and 14 mgs variable and that seems to be the only evidence he is using to say that. Fatigue has not even been much of a factor in my journey so far. He also said that there would be no point in ding a Synacthen (spelling?) test as these are not accurate.
On top of this, he also said that he thinks that the PMR has burnt out- I wish that were true but have no evidence of this- I am still recovering from a huge flare before Xmas which was confirmed in my CRP going up dramatically.- he said that that was probably just withdrawal pain.
I just really wonder sometimes why I bother going to a Rheumatologist- all I seem to get is questionable conclusions that are really upsetting.