7 years

[Racerg52]

I’m a trucker on disability because of pudenal neuralgia. Seven years ago I went to the doctor with my symptoms and came out with 3 different cancers. I no longer have cancer, but am suffering so much more from Pudendal neuralgia that it’s becoming unbearable. I feel like I’m in my own as I have no family doctor but, through a clinic, have been referred to several doctors. The wait list for them is so long, that one doctor actually refused my referral.

Most, well, almost all, of my info has come through my own research. In Canada it’s very difficult to get a formal diagnosis and even more difficult to get treatment.. I realize I’m not alone after discovering this group. Thanks for listening.

[BlueLagoon007]

You need to get yourself a good pelvic floor physiotherapist as they can help a lot and a doctor who actually specialises in pudendal neuralgia or who knows a lot about pudendal neuralgia. An osteopath can help too. I don't know about in Canada but there are some in the States but there again I live in Australia and we are lucky to have a couple of doctors who work in Sydney.

Look up on YouTube as there are some really good interviews on that site.

All the best and take care

[Racerg52 in reply to BlueLagoon007]

Thank you. My wife and I search the net tirelessly. She’s searching anything and everything. I’ve had so, so many different types of treatment. Nothing worked and some made things worse. It’s so frustrating and difficult in Canada, especially since we lost our GP. Getting any necessary diagnostic testing is almost impossible……. NOT GIVING UP THOUGH

[LNLPANDORAS]

I feel your pain and I'm so so sorry. I have still had no luck finding any relief. Going on 4 years now, dozens of doctors, clinics, medications, blocks, books, exercises, PT which I go to once a week going on 4 years now. It's debilitating and controls what little life I have. I never see it being any different and have to fight the urges to just end it all every day. I pray you have better success than I have.

[Builderboy]

hi Racerg52 , hope u are bearing up , I know it’s a sensitive question but cud you tell me your symptoms please as It would help me no more about pundendal nerve problems,thanks Steve

[SJ111]

Dr Mark Conway in NH can help you if you really have pudendal nerve entrapment. You’ll probably want to organise a video consultation with him so he can evaluate your symptoms and hopefully arrange a pudendal nerve block, they use this as the main diagnostic tool for pudendal neuralgia and chances / success of pudendal nerve decompression surgery outcome. He learned under Professor Robert’s in Nantes, France who pioneered the surgery, the team in Nantes are the best with this condition but I understand that is a long way for you, probably best to try get in contact with Dr Conway to arrange a nerve block if you truly have pudendal neuralgia.

Regards,

Scott

[Racerg52 in reply to SJ111]

Thank you. I’ve actually been researching doctors in the US. Dr. Conway is one of the doctors on my list. Thanks again.