7 years : I’m a trucker on disability... - Pelvic Pain Suppo...

Pelvic Pain Support Network

19,714 members5,776 posts

7 years

Racerg52 profile image
6 Replies

I’m a trucker on disability because of pudenal neuralgia. Seven years ago I went to the doctor with my symptoms and came out with 3 different cancers. I no longer have cancer, but am suffering so much more from Pudendal neuralgia that it’s becoming unbearable. I feel like I’m in my own as I have no family doctor but, through a clinic, have been referred to several doctors. The wait list for them is so long, that one doctor actually refused my referral.

Most, well, almost all, of my info has come through my own research. In Canada it’s very difficult to get a formal diagnosis and even more difficult to get treatment.. I realize I’m not alone after discovering this group. Thanks for listening.

Written by
Racerg52 profile image
Racerg52
To view profiles and participate in discussions please or .
6 Replies
BlueLagoon007 profile image
BlueLagoon007

You need to get yourself a good pelvic floor physiotherapist as they can help a lot and a doctor who actually specialises in pudendal neuralgia or who knows a lot about pudendal neuralgia. An osteopath can help too. I don't know about in Canada but there are some in the States but there again I live in Australia and we are lucky to have a couple of doctors who work in Sydney.

Look up on YouTube as there are some really good interviews on that site.

All the best and take care

Racerg52 profile image
Racerg52 in reply toBlueLagoon007

Thank you. My wife and I search the net tirelessly. She’s searching anything and everything. I’ve had so, so many different types of treatment. Nothing worked and some made things worse. It’s so frustrating and difficult in Canada, especially since we lost our GP. Getting any necessary diagnostic testing is almost impossible……. NOT GIVING UP THOUGH

LNLPANDORAS profile image
LNLPANDORAS

I feel your pain and I'm so so sorry. I have still had no luck finding any relief. Going on 4 years now, dozens of doctors, clinics, medications, blocks, books, exercises, PT which I go to once a week going on 4 years now. It's debilitating and controls what little life I have. I never see it being any different and have to fight the urges to just end it all every day. I pray you have better success than I have.

Builderboy profile image
Builderboy

hi Racerg52 , hope u are bearing up , I know it’s a sensitive question but cud you tell me your symptoms please as It would help me no more about pundendal nerve problems,thanks Steve

SJ111 profile image
SJ111

Dr Mark Conway in NH can help you if you really have pudendal nerve entrapment. You’ll probably want to organise a video consultation with him so he can evaluate your symptoms and hopefully arrange a pudendal nerve block, they use this as the main diagnostic tool for pudendal neuralgia and chances / success of pudendal nerve decompression surgery outcome. He learned under Professor Robert’s in Nantes, France who pioneered the surgery, the team in Nantes are the best with this condition but I understand that is a long way for you, probably best to try get in contact with Dr Conway to arrange a nerve block if you truly have pudendal neuralgia.

Regards,

Scott

Racerg52 profile image
Racerg52 in reply toSJ111

Thank you. I’ve actually been researching doctors in the US. Dr. Conway is one of the doctors on my list. Thanks again.

Not what you're looking for?

You may also like...

Pudendal neuralgia

I’ve had pain in my penis for about 2 years now I’m 22 years old and I’ve been to my doctor...
Jessw22 profile image

Can a firm diagnosis of PNE lead to treatment, or is it just pain management?

I've had pelvic pain for 10 years, starting with vulvodynia and internal vaginal pain on...

I need to know if I’m the only one 😿

Hello everyone, I was always under the impression that my suffering of the burning sensation...
Debra13 profile image

DCT your thoughts please??

I have just been reading the DCT website and I’d like to know more and maybe get some feedback...
1980natty profile image

I have had enough. I can’t take it anymore. Just when things look a little better.

Hello everyone, I decided to post on here and I haven’t in a while. I was starting to battle...
Debra13 profile image

Moderation team

Alaine1 profile image
Alaine1Administrator
PPSN_TracyM profile image
PPSN_TracyMAdministrator
Tree_Tops profile image
Tree_TopsModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.