builder boy

[Builderboy]

hi , about 2 years ago I noticed I started getting a burning sensation between my bum cheeks and around my bottom which was getting worse with time so I tried lots of creams and didn’t really work so went to doctor and he also told me to use different creams, I thought this is going no where so searched the internet and started to think maybe I’ve got sort of Pudendal neuralgia symptoms, decided to go and see a spine consultant at the London Spine Clinic he decided to do 2 mri ‘scans which showed everything was fine,,,,, when we spoke about things he didn’t want to talk about nerve problems or the pudendal nerve because as I had a disc operation some 20 years ago on S4 and S5 he’s suggested that having 3 injections to that area,,,,,,,, a Right S5 transforaminal injection - a Caudal Epidural- and Facet joint injections is the right place to start I don’t know why but I’m just wondering if he’s gone for the obvious place but maybe not the right place ,, I’m just so stressed out about what to do who to see , sitting is just shit ( Sorry) has anyone else had all these type of injections , can anyone point me in the right direction,,, thanks Steve

[Onslow729]

Sorry to hear how much you're suffering.

I had spinal surgery in November 24

A Spinal Stenosis Laminectomy which was ok for 4 months

Now for the last 3 months I can only stand for a few minutes and walk a short distance

Spinal Surgeon just said it’s nothing he has done and must be my Neuropathy Nerve damage getting worse.

I’m waiting for a second opinion as another MRI now shows the disc has protruded and it pressing on the sciatic nerve.

Technically whatever he has done has made everything a lot worse but he doesn’t want to know.

Be careful who you see next.

Good Luck

[Skye22]

Sorry to hear you having difficult time. As your doc didn't want to talk about certain things and your mri was clear it sounds a bit off that they suggesting injections with no confirmed diagnosis in what is causing your pain.Firstly I would get a second opinion and maybe look at other possible causes of what is causing your pain.

I have levator ani syndrome which causes bottom and rectal pain and difficulty with sitting.

Treatment is internal external vaginal trigger point therapy which helps alleviate some of the painful spams done by a specialist womens physio. I also get 3mthly botox injections into pelvic floor. While it doesn't eradicate pain altogether it makes a big difference in the intensity of painful spasms.

I wish you good health and hope you find the right treatment that works for you.

[Builderboy in reply to Skye22]

Hello Skye , it’s so difficult isn’t it getting properly diagnosed, I’ve never heard of what you’ve been diagnosed with but sounds very similar , I’m getting another opinion who’s giving me a ultrasound to try and detect any nerve damage to pudendal nerve, thanks for replying as much appreciated thanks Steve

[Autu]

hi it could be pudendal Neuralgia, I’ve had this since 2019. Wondering if you do any cycling?

[Builderboy in reply to Autu]

Hi Autu , no i don’t cycle, this Tuesday I’m having a nerve block put into both sides of pudendal nerves using ultrasound, but could you give me any advice to how if anything you have found that has helped you , take care Steve

[Autu in reply to Builderboy]

Hi yes I’ve had the nerve block using guided ultrasound, unfortunately it didn’t help. A lot of people say that it doesn’t unfortunately but I hope you are one of the lucky ones!

I’ve had loads of nerve medication too, all unsuccessful. I’m sorry to be so negative but nothing has helped me & I’ve had it since 2018.

I belong to a Facebook group, Maybe you should join, you could find it useful, Marion is a moderator and works tirelessly to raise awareness for PN and had recently written a book which is now on Amazon!

The Facebook group is:

Pudendal Neuralgia And Pelvic Pain Social Group UK

The book is Bits & Butts A-Z of Pudendal Neuralgia by Marion Jones.

I hope this information helps, good luck with your nerve blocks.

[VFR1200]

This could be pudendal neuralgia, an MRI won’t show this, contact Bristol Pain Clinic Dr Greenslade, he is an expert in this area and has helped me enormously. I were would get his opinion before doing anything.

[Builderboy in reply to VFR1200]

Hi , thanks for your opinion and giving the name,, I have heard of this specialist before, this morning I travelled to Milton Keynes to a pain management clinic that has experience in dealing with PN to have my nerve blocks , im waiting still for all the numbness to go away before I can give an opinion,

[Builderboy]

hi as everyone does we go through a lot of stress ,pain , worry , I posted a few weeks ago I was going to have two nerves blocks to each side of my pudendal nerves I did a lot of research, seeing expensive spine consultants,reading loads , then had a chat with a pain specialist from the RAD clinic s , had an hour consultation and then the blocks, I’m not going to say they didn’t hurt ,I originally was getting really impatient and majorly stressed thinking it’s not working, I phoned he just calmed me down saying give it 4-6 weeks then all of a sudden after 3weeks I’m feeling better not that extreme burning feeling in my pereniumm where sitting was a big problem so im hoping that slowly it will completely go and yes I might need more blocks but so be it