Hello,
I am new to this forum and looking for information on Boston area Health care practitioners that deal with Pudendal and Obturator Neuralgia. I have been at the Newton Wellesley Pain Mgt clinic and have had 3 injections that have not helped. Also been doing pelvic PT for approx 6 mo with no relief. Tried baclofen suppositories and about to try Gabba suppositories. Any information is very appreciated. Thank You!
I used twice daily a suppository baclofen 4mg/diazapam 5mg/ketamine 15mg all in the same suppository. Plus 300mg of gabapentin pills three time a day. I have pudendal neuralgia not entrapped of the nerf. My Dr is Dr Micheal Hibner from Scottsdale AZ . Go see all his videos on YouTube it helps a lot to understand
Sorry to hear you are still in pain after so many interventions. Living with pelvic pain is awful.
I've been dealing with it for 4 years now. I have heard very good things about Pelvic Health and Rehabilitation Center - Pelvic Floor Physical Therapy Lexington. I have spoken to one of the founders, Stephanie Prendergast on Zoom. She was very helpful but unfortunately, I live in Canada so not so easy to go in person.
Good Luck!
Unfortunately, Baclofen did not work for me at all. My search for help here in Alabama has been long (3 years) and not very successful. Pelvic PT, blocks of every kind, exercise, drugs........ It goes on and on and I am not very hopeful. I hope you can find something to help you!!!! It can be long, involved journey.
Hi.
I’m having a pelvic pain for almost 3 years now. Most of my symptoms related to a sitting pain, rectal pain and some issues with bladder. I visited so many doctors, most of them had no idea what is going on with me, often feeling abandoned. I have done an MRI, which didn’t show anything abnormal. I was in so much pain, lost 12 pounds in 2 months, literally lost hope that my life will be normal again. Finally I was diagnosed with the pelvic floor dysfunction due to muscle spasm and after that I started looking for anything that could help me with this condition. Btw, I have a Hashimoto as well and all those troubles started when my TSH was unbalanced.
The life changed after I read the book by Dr Wise and Dr Anderson “A headache in the pelvis”. This book is a “bible” for patients who suffers from pelvic floor muscle dysfunction. You should read this book because you will find an exact story experienced by Dr Wise who found a method that helped him and other thousands of patients to become symptoms free.
I was taught his method called Wise-Anderson protocol and for the last 23 months I’m following this protocol at home every single day. I believe in his method now, because it gave me a hope that I can return to my normal life without drugs, surgeries, injections, the hope that I almost lost. I started feeling better in about 2-3 months of following the protocol. And now my life is almost normal again. I wasn’t able to sit for more than 15 minutes a year ago, I went to Europe on vacation and sit in the plane for 9 hours. My symptoms are improving. The sitting pain is still there but much much less intense. My rectal pain is gone. My bladder problems are almost gone.
Also, they recommended me a cushion pillow that I ordered from the theraseat.com site. It really helps with the sitting pain. I’m using in in the car or anywhere if I need to seat for more than an hour.
You can check the website pelvicpainhelp.com where you’ll find a tons of information. There is a combination of external and internal trigger points releases, some stretches and the most important the relaxation that you have to do daily.
It’s a stress related condition and find a way how to deal with the stress is a daily task. Everything that helps you to get relaxed, will help with these symptoms.
Hope you will feel better very soon! Good luck!
Feeling discouraged:(
Doctors in north west UK?
Anyone from Charlotte NC area?
Sacroiliac area and groin pain ( I cannot lie down or sit)
