Electric/ burning pain & numbness

[Lily1986]

Hello.

I am in pain daily but more recently I’ve been getting intense lightening/ electric shock pains in my groin and thighs. This is a accompanied by burning and numbness. My right outer leg is now completely numb (this has happened before but without the pain).

I do have stage 4 endo involving bowel, adeno and overactive bladder for which I’ve had 5 surgeries including two excision, removal of left ovary & both Fallopian tubes.

A recent MRI confirmed rectosigmoid endo, dense adhesions and adenomyosis has returned (again).

I’m in pain every day with my back and pelvis which radiates down my legs to the point I can’t sit, stand or walk for long and have previously been told my nerves are damaged and take pregabalin.

This new pain and numbness happens at anytime but more so when laid down or sat and it is making it increasingly hard to get comfortable in bed.

Has anyone else had this type of pain too?

Every time I speak to my GP I’m treated like I’ve just landed from Mars and made to feel I’m wasting their time so really don’t want to ring them.

Best wishes to you all xxx

[kalecolbe12]

I get them in my torso area but not all the time and I've had pelviv floor dysfunction for about two years and I am on a very small dose of gabapentin.i also went to pelvic floor PT and that should help all of it...legs etc if you go... Pelvic floor pts are very understanding and much better than doctors... Or even a regular PT ..it could be nerve damage but it sounds more like myofascial ligament damage

[Lily1986 in reply to kalecolbe12]

Ah thank you. This is reassuring to know, I was meant to start pelvic physio last week but it has been cancelled as it’s classed as non urgent till after covid crisis.I will read up on ligaments, I know that lots of my ligaments they found were completely destroyed by endometriosis at my last surgery which was in 2018.

After posting this yesterday, I sat down on sofa and when I went to get up something happened inside/ or around the right of my tail bone and I can tolerate a lot of pain but this was something I’d never experienced before and was awful. Like something had got caught inside. Now I can feel it twinging away and I’m being so careful not to move in wrong way to make it happen again.

I’m guessing it must all be connected.

Best wishes to you xxx

[lily0521]

Hi Lily!

I rarely post messages here. I saw that we got the same name and got the same issues. For the past year i developed the same symptoms you describe . It is very frustrating going to doctors and not helping you. Is a condition that not many understand what are you going through.I have been to many scans and doctors not helping much. The condition improved over time ,but are days that i get unconfortable because of the burning pain which returns. I got problems with my bowels because of nerve damage from my spine when i gave birth 7 years ago. I got laminectomy surgery to remove a hematoma where o got the epidural

. Since then ,my bowels never return fuction again. In the past year ,when i had a cesarean section on my third child,i started developing symptoms like you describe. I had Mri of my whole spine, they can't find anything. I believe it may be an issue from my bowels ,irritating the pudendal nerve. I got the burning pain only on the right side of my intimate area.

All i can say is do not lose hope! Believe in God's Healing and know that you will get better if you pray and trust in Him. This is my only hope. Everything is possible in Jesus Christ! Be Blessed!

Lillianne

[kalecolbe12 in reply to lily0521]

I have the same... The bowel movement causes burning pain and muscle spasm although it got better over time too I still have flare-ups sometimes... Pelvic PT said it was the tight muscles irritating the nerve and once the nerve is irritated it takes a long time I have had it two years but definitely getting better after a year of pelvic PT and meds I was just wondering how long you've had it?

[lily0521 in reply to kalecolbe12]

I got it since sept 2019. It started with pin and needles and burning pain and numbness down to my right tight.I got better since then and hopefully it will go away with time. Let's hope to the better! Stay positive! Be blessed!

[Lily1986 in reply to lily0521]

Hey- great name! 😊 Thank you for your kind message. It’s also very informative.

I really hope things improve for you soon too xxx

[Roger_D]

I took Pregabalin for Pudendal Neuralgia for a while a few years ago but I stopped it because I was unhappy with the side effects. I felt it made it harder to concentrate when driving and I was slightly wobbly on my feet. Of course not everyone will find the same problems but I started managing my PN pain mainly through exercises based around squatting with knees wide apart and back straight followed by stretching up onto my toes. I would do this several times a day with or without conventional pain killers such as ibuprofen. This might not help everyone but could be worth trying. Good Luck!

[Lily1986 in reply to Roger_D]

Ah thank you, that’s very helpful.Best wishes to you x