Levator syndrome: What can I do for... - Pelvic Pain Suppo...

Pelvic Pain Support Network

19,409 members5,659 posts

Levator syndrome

Bradyy profile image
12 Replies

What can I do for levator syndrome, any pills that help

Written by
Bradyy profile image
Bradyy
To view profiles and participate in discussions please or .
12 Replies
kalecolbe12 profile image
kalecolbe12

Join levator ani support free on Facebook... I have levator ani and I take muscle relaxers low dose during the day and gabapentin for the nerve part of it 300 mg at night also get a sitz bath from eBay and sit in that and it helps take some of the pain try not to get constipated because it will irritate it coming out... Also... We do stress as much as you can and start doing some meditation for chronic pain there is an app called pathways that you can get for free and they have some meditation videos on YouTube... You can also get suppositories to put in to relax spasm ...apart from that people are doing Botox and pain blocks

Bradyy profile image
Bradyy in reply to kalecolbe12

Thank u what kind of suppositories

kalecolbe12 profile image
kalecolbe12 in reply to Bradyy

The doctor can order them from compounded pharmacy and they will mix several components such as lidocaine Valium that kind of thing or you can take a Valium pill and crush it and make your own suppositories with suppository molds you can buy on Amazon or ebay

Skye22 profile image
Skye22

Can reccomend anti spasm meds (colifac & spasmonal) and pain medication (tramadol) also take amitryptiline.

What works best for me is internal external vaginal trigger point therapy with a specialist pain physio in conjunction with botox injections into the pubirectalis muscle.

At present due to covid restrictions I haven't had any treatments since March and my symptoms have got significantly worse. So I hope things get back to normal soon.

Wishing you good health.

Andilynn profile image
Andilynn

If I have an episode, I take tizanidine (prescription) and sit on a heated rice bag (like a heating pad, but homemade). This works well for me.

Bradyy profile image
Bradyy in reply to Andilynn

Thank you how long have u had this

Andilynn profile image
Andilynn in reply to Bradyy

I’m fortunate that I only have rectal spasms on occasion. They usually start right before I go to bed, or as soon I lay down at night. I used to try to massage it away, but that seldom worked and sometimes, it would only get worse. Now I just go with the Tizanidine and heating pad. I always take two Baclofen (muscle relaxers) at night. Maybe that’s why I don’t get them more frequently. I have pelvic floor dysfunction which is likely why I get spasms sometimes. I hope you can find relief. I know this is a dreadful affliction.

Bradyy profile image
Bradyy in reply to Andilynn

Thank you for the info

Pattimoe profile image
Pattimoe

Sorry to hear you are having troubles there. I have struggled with this for 10 years now. Maybe my story is on my page but I don’t get on here regularly.

Long painful story short, after trying a dozen different modalities and pills and shots, I am 80% pain free most days now ever since taking CBD full spectrum!!! (I am not in any way affiliated). I started in January just take one dose a day and it is really my miracle😁

Everyone should try this beforeANY injections, surgery or harmful drugs.

Good luck!

Bradyy profile image
Bradyy in reply to Pattimoe

Is that a pill or drops can u send more info thanks

Pattimoe profile image
Pattimoe in reply to Bradyy

I now take capsules. Also have had gummies and oil. Make sure it’s full-spectrum cbd. Try it, you never know. I’m thrilled with my results❤️

Kamgram profile image
Kamgram in reply to Pattimoe

I take cbd capsules and oil. It really helps. I have cbd coconut oil that I use for pelvic floor pain that I just massage in externally. It’s almost instant relief. I’m not sure if it’s actually the oil or just the massage getting the external spasms and knots out of the pelvic floor. I get my cbd online and very happy with it.

You may also like...

Levator ani syndrome and pudental neuritis

with a Neurologist in NC who he says may be able to help. My Dr mentioned Botox and pudental nerve...

Colonoscopy with pelvic and Levator ani syndrome (Spasms)

in full blown spasms for 2 months and worried. Any advice or insight is greatly appreciated!! Thank

Levator ani syndrome and pudental spontaneous neuritis

has short video on PNE which everyone may find helpful. Please respond. I know this us long post...

Steroid injection for levator spasm

scheduling a steroid injection for levator spasm. Has this helped anyone? How is it different...

Levator Ani Muscle Tear

the group and have been dealing with a torn levator ani muscle (complete tear) from an attempted...