University College London Hospital

[DAML8]

My pain specialist has mentioned referring me to ‘The University College London’ for my chronic pelvic pain. I was diagnosed with Endometriosis 6 years ago and I have had 6 excision/ablation surgeries. My pain has not improved at all, if anything, it has got worse. I would appreciate any feedback or consultant recommendations from anyone who has been treated here for chronic pelvic pain. I know we can’t discuss Dr’s names etc on here so i would be grateful if anyone could inbox me any information big or small to help me make my decision of who to be referred to. Thank you in advance.

[Beezwax]

Hi DAML8,

I presume you live in London - I don’t have endometriosis but was suspected of having adenomyosis some years ago. I was referred to Homerton for investigation including surgery. I found them helpful and I see them for other health issues. They aren’t my local hospital but I would always request a referral there and have been happy with them.

Don’t know if this helps but good luck.

[DAML8 in reply to Beezwax]

Hi, no i live in Hertfordshire but my pain specialist mentioned referring me to the University College London for chronic pelvic pain he didn’t give me anymore information than that. But my gp has asked me to give him the name of who I would like to see..but i have no idea!

[Hidden]

Hi there

I was referred to the University College London for chronic pelvic pain but in my case my issues are tight pelvic floor muscles and vulvodynia type symptoms. I've been a bit reluctant to reply to your post as they weren't any help to me personally but I don't want to be too negative. They seem to focus on helping the patient understand pain and learn to cope better with being in pain rather than try to treat the reasons for the pain. For instance, the psychological aspects of pain and how techniques such as self-care and mindfulness can help. I already understood and was doing various things like this and I really wanted interventions which would help reduce the pain. I find pelvic floor physiotherapy more useful. Hope this helps you decide if it is for you.

[DAML8 in reply to Hidden]

Thank you for replying i really appreciate the information. I agree with you...i too want/need to find the cause of the pain rather than just learning to deal with it. This has been very helpful. Thank you!! x

[Buuldog]

Hi I was referred to them and unfortunately have to agree with another post that they do not really have any answers, they referred me to a self help group to manage and live with the pain, I have not attended yet because the pandemic has put it on hold.

My only real grip is that we build up expectations because they are seen as the experts, I waited about 9 months for an appointment and then had my hopes dashed. I would say do not bother if it means travelling a long way.