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Pelvic Pain Support Network

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Wonderful book that made me realize I was not alone

RobertVerde profile image
23 Replies

A PT gave me a coy of the book "A Headache In The Pelvis". In the first chapter I realized this book was about me. I recommend you all take a look. Helped save me during some dark days and nights for sure.

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RobertVerde profile image
RobertVerde
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23 Replies
rozamond profile image
rozamond

Does it talk about pudendal neoropathy?

rozamond profile image
rozamond in reply torozamond

I read reviews and they were not good

kalecolbe12 profile image
kalecolbe12 in reply torozamond

Well it really helped me too

rozamond profile image
rozamond in reply tokalecolbe12

Does it get rid of pain

kalecolbe12 profile image
kalecolbe12 in reply torozamond

It tells you how to start getting pain under control and you should also be on a medication that interrupts the pain signals like muscle relaxer cyclobenzaprine,nerve medications like gabapentin or Amitryptiline....to help... Pendulum what do you have it's going to take a long time because your nervous system is probably very active and it's a matter of calming everything down ...even an antidepressant or anti-anxiety medication will help, but if you do some of the things in the books headache in the pelvis pain and pelvic pain and pelvic pain explained the collaboration of those books and some medication to help and you habitually everyday doing the exercises daily you definitely will see some change in pain but I am talking in months to a year or two..... Nerves heal very slowly remember that

rozamond profile image
rozamond in reply tokalecolbe12

Have had pudendal neoropathy. For five years have had all procedures live on oxicodone none of the meds u suggested worked.the pain is so bad and seems to be getting worse

kalecolbe12 profile image
kalecolbe12 in reply torozamond

There is a doctor Prolongo doing cryoblation (freezing) of the pudental nerve...depending which part of the pudental nerve is your pain.....Google him ..also some people are doing better with ptns(estim of tibial nerve)a eurogyn,uro,neurologist is who to see.....hope some of this helps...oh wondering if you have tried Botox,nerve blocks etc???

rozamond profile image
rozamond in reply tokalecolbe12

Cues both didn't work even for a minute.

rozamond profile image
rozamond in reply tokalecolbe12

My pain is in the rectum. began after 5hemroids were removed. Told dr after first one I was having terrible pain . he claimed it would go away.By the way he disapeared

rozamond profile image
rozamond in reply tokalecolbe12

Have been to uro neoroligist no help

RobertVerde profile image
RobertVerde in reply torozamond

Need to find another doc - I tired about 8 before I found the right one - Shoskes at the Cleveland Clinic helped me. It's not an endorsement - he just diagnosed me.

rozamond profile image
rozamond in reply tokalecolbe12

Where is this dr located

RobertVerde profile image
RobertVerde in reply torozamond

Dr. Shoske's is at the Cleveland Clinic in Cleveland.

RobertVerde profile image
RobertVerde in reply torozamond

I had terrible pain for 2 years while doing research - everyone thought it was in my head - got a diagnosis and started PT with someone trained in pudendal nerve issue and I am managing well now. My pain level was off the charts like yours. Don't give up.

in reply tokalecolbe12

I have taken cyclobenzaphrene, amitriptyline and gabapentin. None work for me. I may as well taken a tic tac. Hoping to get other ideas here.

RobertVerde profile image
RobertVerde in reply torozamond

the first chapter hit me like a hammer - described all my symptoms immediately - this gave me hope that it was not in my head - I found a doc and a PT that help - the book just gave me some hope - I found it to be very helpful - I reread at least every few months.

kalecolbe12 profile image
kalecolbe12 in reply toRobertVerde

Yes I agree...I was dedicated to doing my stretching/breathing exercises that the PT gave me and after 7 months now of once-a-week pelvic floor physical therapy and medication when I needed it I am doing so much better and those books really helped me... And a few of us people locally started our own chronic pain group from nextdoor.com .Can I ask were you diagnosed with pelvic floor dysfunction/pudental neuralgia and what were your symptoms? Also how long has it been since it started and did you try any medication?

kalecolbe12 profile image
kalecolbe12 in reply torozamond

Yes

RobertVerde profile image
RobertVerde in reply torozamond

yes - it focuses on the pelvis area - all the pain.

kalecolbe12 profile image
kalecolbe12

Me too...still helping me but also healing pelvic pain and pelvic pain explained

rozamond profile image
rozamond

Does it eliminate pain?

Andilynn profile image
Andilynn

I agree that this book is very helpful. It is quite wordy, but made me realize I was not alone and that my pain was a real thing. Two other books helped me too. The best was Pelvic Pain Explained. Healing Pelvic Pain was very good also. I keep these books handy and reread as needed.

Pinky2233 profile image
Pinky2233

Dr David Wise is a saint. I have spoken to him personally.

Thank you for sharing his book I’m sure many will benefit.

This is a quality read. Perhaps more people will read this instead of Ms Steins. Her extreme Greed supersedes any good in this world.

His book takes such care and the editions allow it to help masses of people. His practice puts the patient first instead of his pocket.

Good for you for listing

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