JUST VENTING!

[trishj46]

I have had pn 8 years now and I have hit the end point---I can take no more----do not offer any suggestions for there is nothing I have not done---I am in excruciating pain now that never stops---I am venting.---I can not lay, stand, walk, have spinal injury too. Proiblem with family right now on how much I hurt them, so I cannot talk about my pain. They are good bit do not get it asfter all thisd timer.

At the end of the line with pain everywhetre but worst rectally and vaginally I ammbeing scorched and trapped between caregivers who know nothing of what I live. I use God and beg to die but he does not want me either--judtv spent three vdays in hospital to get some pain control and then home to the same life of hell. This will be dropped tomorrow but right now I cannot keep going. I want to go out and vwalk--walk-and never stopm till I drop over. I am sorry to dump this on all of you who suffer too. Enough is enough! I am homebound Just pray I never wake up. I am a coward I know that but I am at the end of my rope---bring peace to everyone if I were gone. Losing my hearing more and more, blind in one eye. Lost bladder and bowel. now leg from broken hip. Please just PRAY for me! Love you all !

[Pinky2233]

sending hugs

[kalecolbe12]

Many prayers coming your way...try to hold on ...maybe a Christmas miracle 💙

[Afrohair]

I am so sorry you feel this way but please stay with us god is not ready for you yet your family needs you and you are loved please pray for healing and bring peace to yourself and calm even if just for a few minutes no that this is only temporary and each individual has a purpose on earth

[JulieA63]

I feel your pain literally I have no words to comfort you that would help what’s going on the feeling that you are drowning with no life jacket to save you, I have been there so many times and the only thing that helps for real for me is my faith my faith in my savior Jesus he is always there he never leaves me in my good days ,fair days and my absolutely worst days he is gets me through each and everytime and that is what I’m praying for you hang onto your faith for your life God will not leave you ever I pray that you can right now feel how much he loves you and that you feel his comfort, peace,strength and his grace 🙏❤️May the Lord Bless you and keep in Jesus’s name amen

[Painplus]

Nothing can be said to relieve your pain. Only prayers and faith will help. I will say prayers for you and yours.

[Simo7]

Healing thoughts to you, if not for your body then to your mind to help you cope with your situation x

[willemine]

Compassion i pray for you that this condition stops and you get strength or relieve

Prayers sending up !

Hugs from Holland

[trishj46 in reply to willemine]

Thanks to all of you --I feel your prayers!

Love you all!

[Wewillgetbetter]

I pray for you sister. I’m going through a similar thing. It’s horrible. I pray for you.

[swarke22]

Please please see dr Mayo Friedlis pelvic pain in women, on utube, if you are in the U.K. there is one company that does private platelet rich plasma calledalgocells. I know you don’t want more suggestions but please look utube up. It’s given.me hope.

[trishj46 in reply to swarke22]

I would love to----but not in UK----in US

agony today---anything on utube here?

you are very sweet! hugs!

[swarke22 in reply to trishj46]

Look on utube. Dr Friedlis is in us

[trishj46 in reply to swarke22]

Thank You!

[swarke22 in reply to trishj46]

You are so welcome. We have to stick together x

[Konagirl60 in reply to trishj46]

Have you seen Dr. Hibner in Phoenix?

[swarke22]

Ps I had pudendal decompression and it did nothing. I’m starting these prp very soon.

[trishj46 in reply to swarke22]

I had it too---no good!

Thanks for PS

[Konagirl60]

You are no coward. This ailment is the worst next to CRPS! Don’t beat yourself up.

Has any doctor offered you Valium/Lidocaine vaginal Compound suppositories for bedtime? They really help. ( 10mg/1% ) I pray you get some.

What about a 25-50mcg fentanyl duragesic patch that’s replaced every 72 hours?

Hang in there. I totally understand how you feel. I’m in the same boat as you are.

[glenbanchor]

Here the medical profession suggest estrogen cream once or twice a week. I just use nitofuratoin antibiotic and seemingly I can take one if I suspect a UTI. and take D-Mannose to neutralise the body as acid foods don't help like coffee etc. Eat only alkaline foods if possible. Lemon juice and honey help and no oranges.

I try to keep my bowels as empty as possible as I've noticed nippy pain when full. Take senna etc if constipated. My doctor advised all of the above. I also got tiny little blue pills to stop having to go to the toilet to pee through the night. They work called Ditropan but there's others seemingly doctor can prescribe. Drink plenty of water through the day and nothing after 6pm and no alcohol as this makes things worse.

I sometimes use Lidocaine in Germaloides if very sore in the nether region but it tends to nip so maybe anusol would be better.

Any soothing cream helps.

I've been to a gynocologist and she said I didn't have a prolapse and my pelvic floor is finebut I had a skin tag. I do pelvic floor exercises as advised.

So supposed to see a urinologist. Think I'll just continue to manage things myself if possible.

Somedays better than others. I lost weight and that helped hips. Have arthritis there bad. I lost weight on the Keto diet really works. Little carbs as possible and no sugar. Can eat fat and keto burns existing stored fat.

Cant think what else to advise. One in two people suffer from this discomfort/pain according to the medical profession.

[Servantofhis]

My thoughts and prayers are with you. Know that you are loved, even by those you don't know. Isaiah 41:10 says, "Do not fear for I am with you. Do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand."

I pray that this will bring you some comfort.

We can ñever understand what you are truly going through.