Pudendal neuralgia

[NaomiFB]

Hi

I think it's Dr Baranowski i need to see for diagnosis and treatment. Annoyingly AxA ppp don't provide cover for seeing him. Any idea on cost for consultation, and treatment after that? Also does my Gp need to refer or can I self refer?

Many thanks in advance

[lucyp]

I saw him nine years ago ,he was charging£450per hour then. I would expect it to be more now, but this might give you an idea.

Regards lucy

[NaomiFB in reply to lucyp]

Oh gosh!! Pricey!! I don't even know if I have PN yet, so hoping my GP can diagnose first??? Can I ask if seeing him helped? Did you get a nerve block? I'm lucky in that I get flare ups, but can go days, weeks if I'm lucky with no pain!! So wondering if I can just treat with appropriate painkillers, such as pregabalin during flares. Thank you for answering my initial query Lucy

[lucyp in reply to NaomiFB]

I dis go onto have nerve blocks as I had non stop excruciating pain. This is something I would nor recommend unless your condition bothers you a lot. It gave me long term muscle spasm that I had not previously had, don,t know if this has happened to anybody else. Your GP is very unlikely to be able to diagnose you as this condition is not well known at all. If you can manage I would stay away from nerve blocks, or consider a pelvic floor physio who is familiar with dysfunction.

Hope this helps,

Lucy

[NaomiFB in reply to lucyp]

Oh poor you Lucy!!! Really feel for you for going through all this!!! I really hope that your pain is better now!!! I was seeing a wonderful pelvic floor physio who I was seeing privately, and my pain was getting much better!!! But she thought that seeing a chiropractor might help, as during flares I get a lot of pain around my symphysis pubis and she thought seeing a chiropractor might help with any bone misalignment which could be causing the pain. Well it was a complete disaster, and by the third session I just knew I couldn't cope with it anymore!!! My physio was doing pelvic floor strengthening with me, and that seemed to be really helping. But I don't think she actually specialises in PN. But the stuff I was doing with her definitely helped!!! My GP said about referring me to a gynaecologist??? I don't know whether that is worth pursuing?? I'm still doing the pelvic floor strengthening alongside regular mindfulness to help with relaxing my muscles, which seems to help. I really appreciate your advice!! I literally don't know anyone personally who experiences this type of pain, and people are very sympathetic, but they really don't know what to say to me.