Mysterious pain: Hello everyone, Im new... - Pelvic Pain Suppo...

Pelvic Pain Support Network

15,341 members4,668 posts

Mysterious pain

Pudding098
Pudding098

Hello everyone,

Im new to the group and was wondering if anyone can point me in the right direction.i have been to the doctors so many times and had no results and because i also have anxiety disorder i think they just think oh her comes crazy.

I have had a pain from as long as i can remember, it wasnt constant it usually flaired at night. It felt like it was in my foot, and it was an agonizing ache deep into my foot. I used to try and massage to get to the pain but never found it. I could almost follow it up through my calf and thigh and bum but not locate the source. My instinct was to warm my feet, the pain was a bit like the initial pain of putting your foot in freezing cold water. (Pain only in one foot at a time but got it in both)

So last year i was 24 and just woke up with sciatica, went to docs got something to ease the pain and 3 weeks it was gone. But i have been left with this near constant pain that feels like a dulled down version of the pain i get intermittently going from my right top buttock down into my foot. Both feet do still get the intermittent agonizing pain but now the right is worse. So im guessing its somehow nerve related.

If anyone has experienced something similar please let me know or any theories on what it could be. Thankyou in advance for any replies

*few notes

I always wear supportive shoes and i dont have a dropped arch

I do however have an extra bone in my foot an accessory nevicular (i dunno if theres one in both) doctor reckons though this isnt related to the pain.

Tried to draw a red line where the pain is

Thanks

Pudding

17 Replies

Sounds like sciatica. This can cause numbness in your legs and feet. The pain maybe comes from the sciatic nerve. The doctor should be able to tell. My daughter had a extra bone in her ankle when she was young and we found out when she always seemed to sprain her ankle. She outgrew it eventually and didn't have any problem as she grew older. It probably doesn't have anything to do with the pain. We are not doctors and these are only suggestions and no one can tell for sure unless you have a good examination and possible tests. Wish I could help more. I hope you will soon find peace with the problem.

Pudding098
Pudding098 in reply to charlee4

Thank you, i have just had no luck with the doctors, thats good to know about your daughter, i must admit i used to always go over on my ankle so hopefully i have grown out of any problems caused by the bone. I will persist with the doctor. Thank you for your advice.

Hidden
Hidden in reply to Pudding098

Sounds very sciatica like to me. If it’s chronic, as you describe, then they should be referring you for an MRI to try and find the cause. Sciatica isn’t a condition in itself - there is always an underlying cause such as a herniated disc, an inflammatory arthritis (which can affect people of any age at all) or several other possible sources of sacral nerve compression. If it’s just a temporary thing then that’s another matter - but yours is persistent and so I think you need to be persistent with your doctor too!

Pudding098
Pudding098 in reply to Hidden

Thank you that is really helpful, im not really at the doctors much but i feel that because of my anxiety and depression disorder they dont take any other health concerns seriously (i am currently managing my anxiety very well too). Your reply has just given me the motivation to keep trying. I didnt say before but i can get it in my hands too rarwly as bad as my feet and legs which is the only thing that makes me think not sciatica. Thank you so much for replying.

Hidden
Hidden in reply to Pudding098

I get horrible pain in my hands too so have the same thoughts re not all being sciatica. But I don’t have anxiety or depression so I wouldn’t think the two are obviously related.

Yes doctors are often apt to dismiss us, particularly if we inwardly dismiss ourselves. Have faith in yourself. You can have anxiety, depression and have sciatica or rheumatic disease or any other thing wrong after all. And don’t forget that chronic pain will make us anxious and depressed. X

Pudding098
Pudding098 in reply to Hidden

Thank you, this reply gave me a little boost 😁😁

You say your feet feel like there freezing? I've had sciatica and yes it sounds like that but the feet feeling cold and it being in your hands also it sounds like nuerophathy. I have advanced pheriphal nuerophathy in both legs and when mine first started my feet were always cold and hurting I could put them nearly in the fireplace and could feel nothing. Then eventually the pain started radiating up into my legs to my thighs. It can go into your pelvic area also hands etc. You'd have to go to a nuerologist and have a EMG done to diagnose it.

Pudding098
Pudding098 in reply to Liz_2018

Thank you i will mention this to the doctor do you mind me asking when you first got the pain? Is it something your born with? I hope you have had luck with getting the pain sorted. Has anything helped? Thank you so much for reply

Liz_2018
Liz_2018 in reply to Pudding098

No it just happened my feet were cold all the time driving me crazy felt like I had them in ice buckets no matter how many socks I put on or what I did I couldn't get them to warm up. Like I said I could put them nearly in the fireplace and feel nothing. Then they started hurting as well and then radiating up my legs. Mine started both my feet at the same time though.

Pudding098
Pudding098 in reply to Liz_2018

This does sound like the same sensation, im surprised ive not burnt my feet off trying to get them warm, and i get what you mean by its drove you crazy, i go a bit manic warming and massaging my feet and hands. Im not really familiar with nuerophathy so i will definately ask about it. Thank you fingers crossed it can get identified, i think coldness can set it off and painkillers dont really help, but luckily the worst pain comes and goes in a day or night. And the constant pain is manageable.

Liz_2018
Liz_2018 in reply to Pudding098

If you can get some diabetaid lotion and start using it may give you some relief. I know it really helped me.

Liz_2018
Liz_2018 in reply to Pudding098

I was diagnosed in 2008 I was put on gabapentin and stayed on it for several years I finally weaned myself off of it. I didn't like the side effects. I can't take Lyrica. I do use a lotion at night and mostly only in the wintertime it's called DiabetAid. Mine seem to bother me more now in the winter. I had pretty much had it under control keeping very active until I ended up with this problem in 2010.

As i sit here in the osteopaths waiting for my appointment i say u sound like u have sciatica same as me!! It horrible ...

After years of painkillers i have been cut off as i now have liver and kidney function prob through to Many painkillers so have been told no more till november! When i have next blood test to see if they have got better.

I have been to osteopath now for about 3 months and it has been amazing for me and i truely think until u see a chiropractor, physio or osteo u wont get the professsional help u need as they are only ones that can help u and tablets just mask the pain and u could end up with organ problems

Pudding098
Pudding098 in reply to Lulububs

Awww lulububs that doesnt sound good i really hope your organs recover fully. Sounds like you are getting much better treatment and hope it works for you. I will return to the doctor with the advice given on here and hopefully it will help move things forward. I didnt want to do the whole googling of symptoms but some of the pain is really hard to describe and sometimes the way someone describing theirs can help me explain mine or even go no thats not the same. Thank you so much for your reply just having someone listening is nice as i feel a bit dismissed at the doctors.

Lulububs
Lulububs in reply to Pudding098

Unfortunately if u are english we go to gp and there great but they only deal with the symptoms ie pain... so they give u meds... meds arw great but they wont heal the problem? Ur still have pain it just hidden.

Then they may send u to physio and there great but unfortunately with nhs physio u wont get the time it about 15-20 per person.

Ive learnt that sometimes u get what u pay for and i have resulted to paying for mine and i get 1 hour 15 mins and it only now i feel that i gone from being in alot of pain to mayb 85% better in just over month

Pudding098
Pudding098 in reply to Lulububs

Wow that is a big improvement, im England too so I deffinately see when you are coming from. If you dont mind me asking do you pay for sessions or pay for the full private healthcare? Thanks

Lulububs
Lulububs in reply to Pudding098

No , sessions i have no healthcare and i was getting nowhere nhs wise it just wasnt long enough sessions and to long inbetween.

So now i been goin once a week for 3 month now and in getting so much relief and im even goin to try not goin for 1 month this time and see if i can go longer as it in such good place now.

It shame we have to pay but sometimes u have to for it to work

You may also like...