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Pelvic Pain Support Network

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missyw23 profile image
12 Replies

Hey I'm new here, I'm lying in bed pretty much stuck here in pain so been trying to find others that just understand how mind wretchinh it is as well as physical don't really know what I'm doing on here yet but will work it out many thanks Missy xx

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missyw23 profile image
missyw23
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12 Replies
csm101 profile image
csm101

Hi Missyw23 I'm new here as well. I understand completely what your going through. may I ask what you have tried to get any relief?

CSM101

missyw23 profile image
missyw23 in reply tocsm101

Thanks for your reply I am on lots of different medication paracetamol, ibuprofen, buscopan, tramadol, gabapentin but its not effective I keep ending up in hospital on oramorph me and my partner are going to push with my doctor to prescribe me morphine I really don't know how to cope with it all I'm at wits end with it x

csm101 profile image
csm101 in reply tomissyw23

Morphine is not what you want but I understand there are times when nothing works. Have you looked into Medical Marijuana? Have you been referred to a pain specialist?

missyw23 profile image
missyw23

I know but its my only option I'm in the uk so marijuana is illegal over here but I do smoke it occasionly I'd do anything to help these pains x

csm101 profile image
csm101 in reply tomissyw23

Does it help? Do you at least get some rest? You need to build from a base, Find something anything that may work and go up from there.

missyw23 profile image
missyw23 in reply tocsm101

Yes it does help, doctor isn't licensed to give me morphine I have pain management soon and hopefully they can eventually help the DWP said I'm fit for work there's Noway on this planet I would cope the phone call aloneStressed me out and triggered my pains but thankfully they didn't progress so after4 days of being bed bound I can now do the washing and cook a nice meal x

csm101 profile image
csm101 in reply tomissyw23

hey Missyw23 how are you feeling today?

missyw23 profile image
missyw23 in reply tocsm101

Hey pain wise Rather good just niggles, how are you? I'm struggling a bit with anxiety I need to go town thats why I'm on here to try and push myself hope you are well xx

csm101 profile image
csm101

Thats great news... I'm having a little setback but I hope it wont last too long. Have you tried Lyerica ? that helps with GAD

missyw23 profile image
missyw23

I have a little affirmation I tell my myself when having setbacks 'a setback is just a platform for your comeback' and no I've never heard of. it and what is gad I'm having a research night tonight so I'll add it to my list x

phoenix42 profile image
phoenix42

Is there a pain clinic near you.. There is a one at UCH in London. Sacrocranial therapy helps me.

csm101 profile image
csm101

wow this conditions has really kicked the snot out of me. Not sure what else I can do or try. I was having a few good weeks then pow i kick in the groin. Right now if a Dr me that the pain would go away but they need to remove my penis I would hand if a knife to start cutting. really not in a good place at all

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