Pelvic Congestion : Hi, I am working... - Pelvic Pain Suppo...

Pelvic Pain Support Network

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Pelvic Congestion

unlucky2014 profile image
5 Replies

Hi,

I am working closely with a PR company to raise awareness for PCS in the UK, if anyone who is currently experiencing or have experienced PCS, I would be grateful if you could complete the below survey, this will help us gain statistics and support the awareness for PCS.

We would like to hear from you about your experiences, good and bad, to help us understand the barriers people face when they seek treatment. In order for us to gather information on this we are carrying out an online survey that asks a few questions about your experiences of getting diagnosis and treatment.

You can access the survey online here: surveymonkey.co.uk/r/JLLN9KB

All answers will be anonymous and we will not use your information without your permission

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unlucky2014 profile image
unlucky2014
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5 Replies

Would you be willing to share our petition with the PR companies? It relates to all pelvic pain and would benefit all patients if we can raise awareness. Thanks.

petition.parliament.uk/peti...

unlucky2014 profile image
unlucky2014 in reply to

Hi

Don't worry I've already done that and I signed it too, as agree it all relates to treatment and the lack of recognition for conditions relating to pelvic area & pelvic pain.

Im speaking with a journalist next week so will add it into the article.

in reply to unlucky2014

Fantastic, really grateful. Xx

unlucky2014 profile image
unlucky2014 in reply to

No worries, we all have to stick together ! :)

I have been in touch with Alaine on fb about the PCS link in my original post. Will keep you updated x

Heartof3 profile image
Heartof3

Hi unlucky 2014How are you doing?

I can relate to all of your posts. I have recently been diagnosed with pelvic congestion too.

I am currently waitingfor a laparoscopy x

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