PCS - WOOP

[unlucky2014]

Hi,

Ok so some of you know I have had a long journey its been 25 months since I first had symptoms, and today it has been confirmed that I do have pelvic congestion syndrome, after a lot of confusion.

Now my symptoms were similar to endometriosis and pelvic inflammatory, however through constant nagging, I was FINALLY diagnosed with PCS, however last month I went for a pelvic embolization I was in surgery for over 2 hours but the NHS hospital failed the procedure. After more scans, including TV they said that because I do not have reflux I do not have pelvic congestion and interventional radiology (the people who deal with blood vessels) were going to refer me back to gynecology (who originally referred me to IR so being referred back)

To cut a long story short, I spoke with the Whiteley Clinic and today had the most positive visit ever. Because they specialise in varicose veins they can pick up if someone has Pelvic Congestion Syndrome.

If you have been told that you do not have endo or pelvic inflammatory then have a read of the Daily Telegraph and pelvic congestion, it will mention the Whiteley clinic telegraph.co.uk/lifestyle/w... (hopefully the link worked)

I honestly am grateful I was diagnosed by NHS as this made it easier to find a private clinic in the early stages, and after being told I didn't have the condition later on, I thought I would check, as my health is important to me.

[PPSN_JudyB Pelvic Pain Support Netwo]

This is a bit puzzling. Will you be attending a follow up NHS consultation ? just wondering what they are going to suggest. Which hospital attempted to do the embolization ?

[Pinky2233]

Thank you for sharing. Please continue to let us know how you are doing and if you have the procedure listed in the artical or any other and how that goes. This procedure sounds new, please share if you hear from anyonr who has had it done and any possible outcomes. Sending you my best warmest support.