Spinal decompression and Tarlov cysts

[lonely_pelvic]

Anyone had experience of spinal decompression around Tarlov cysts to remove pelvic floor pain? Or even has anyone been told they have tarlov cysts?

[Pepper1977]

Yes I have one and will be getting it investigated soon by Dr Long out of Baltimore. The closed Facebook group pudendal hope people have these cysts in the group

[lonely_pelvic in reply to Pepper1977]

Thanks. I will check on the Pudendal Hope site,not much visible here in the UK

[WFanburg in reply to Pepper1977]

What procedure is Dr. Long going to do, and what has been his success thus far for pelvic pain etc?

Thanks.

DrF

[Pepper1977 in reply to WFanburg]

Dr Long doesn't do surgery anymore but he does injections and will go over your MRI. There is a Dr in Texas who performs surgeries. Dr Long has been in practice for 40 years

[Rosepetal60]

I read of another person on the pain support site, who went to USA to have a a Tarlov cyst removed. ( not as I understand it done in the UK).

[lonely_pelvic in reply to Rosepetal60]

The work would be done on the spine,I have a number of cysts and it is not proposed to remove them

[jacquieb Volunteer]

Hi, I have quite a lot of knowledge about Tarlov Cysts, I also suffer from pudendal neuralgia pain which has been going on for 11 years. I was once in contact with a Dr Feinenberg in the USA. Also saw a Dr Adrian Casey here in the UK. Decided against surgery for lots of reasons. Whatever surgery you have, try and keep away from the base of your spine. jx

[Gabriellina in reply to jacquieb]

Hi. I am Gabriella from Rome, Italy.

I have a 2 cm Tarlov Cyst in my sacrum and Dr Figenbaum wants to do surgery.

In Italy I cannot find surgeons that use his technique but only some kind of nerve decompression...

So I am confused... but I can't talke my chronic pelvic pain any more..

I would appreciate any kind of information you can advice me regarding this nerve and Tarlov surgeries.

Thanks Gabriella

[lonely_pelvic]

Thank you.I have strong reservations about surgery but wanted to see if anyone had success w this op!

[willemine]

I know someone how had a surgery last week they emptyed the cysts by her lower spine and folded them up so they couldn t fill anymore. She couldn t sit i don t know the outcome yet.

[willemine]

She is active on " my chronic pain" het nick name is Bjean

[Karen0248]

I have many Tarlovs cysts also... not sure what my options are to shrink them, hopefully we can get some answers ... they may be a problem in my PN diagnosis.. I have mod to severe pain all the time x 2.5 yrs. had back surgery 2.5 yrs ago for spinal stenosis

thank you for posting this