about three and a half years ago when on a motoring holiday in France my wife started to experience chronic rectal pain following a period of increased constipation possibly brought on by the anxiety caused by being told that she had type 2 diabetes. a colleague motoring with us, a consultant colorectal surgeon arranged an abulance and an immediate hospital examination where five fecaloma were removed from her bowel and was told to return to England and have her bowel cleaned and investigated which was done and nothing was found to explain the pain which was like sitting on a ball or acid being poured into the bowel. after three an a half years we have nothing to explain an ever increasing pain now with GERD and bills for £20K having seen the best this country has to offer.
Dr. Baranoski of the London Pain Clinic suggests Pudental Neuralgia but is not sure recent MRI and CT scans show little except the possibility of the nerve being slightly irritated, my colleague warns against a nerve block only to be used as a last resort and suggests we book in to St.Marks, north London, for a further thorough investigation and a possible nerve blocking transmitter.
What has come out of our visits to a dozen or so emminent consultants, most of which were professors, was that very few were aware of Pudental Neuralgia (including our GP) and most disagreed and had no diagnosis to offer.
The constipation has become intolerable, the pain worsens by the day and eating is a nightmare. There have been three attempts to swollow an overdose in the early years, pleading to be taken to Switzerland to end it all in a dignified way rather than endure a painful death and life as we knew it has ceased to exist as we never go out, I do the shopping cooking etc., and my wife spends her time either in bed, a chair (until the pain is so bad) and walking endlessly around the dining table unable to accept visitors or speak on the phone to anybody save her children and occasionally her sister. Fortunately we are well served with a house cleaner and contract gardeners as I, myself, am disabled having to use two sticks to get around and have terminal cancer currently serving as a guinea pig trialling a new drug that could provide an extension to my life.
The point of this post, and I am new to this community but not to Health Unlocked, is to ask fellow sufferers, and I am sure there are many that can tell a sadder tale, for any advice or contacts for specialists that understand the problems. We are located in Kent, we would go to Nantes but any travel by car worsens the intolerable pain.
THank you for reading, listening and understanding and I look forward to receiving any help offered.