Hi, I haven't posted for a while but I seem to be getting worse and worse.
The latest thinking is that I have scaring over the genito-femoral nerve from removal of an ovarian dermoid cyst and endo (that's what my last gynae told me) but the pain management consultant thinks my pain is from my cesarean. I have always had pelvic pain in a very specific spot and pain going down my leg but my back pain is getting so bad that some days I cant get out of bed, can hardly walk and the pain is unbearable. I can feel the pain in my spine and the pain nurse says I don't need my back to be checked as I already have a diagnosis of my problem and pain can travel up the nerve as well as down. Does anyone know if this is true?
The pain is in my spine just level with the bottom of my rib cage I think and I also have sacro-illiac joint pain. I don't know if all of this is being caused by the same thing or if something new is happening. I can't stand for long or walk for long and if I do I am literally in bed for days.This has been a problem for ages but would only happen occasionally now it seems to be there 90% of the time.
At my pain clinic you see a consultant when you are initially referred and then have injections (which didn't do much) then you don't see him again. There are two nurses and no appointments as one has just left. I don't know what to do, I can't afford to keep paying for private treatment but feel I have no choice if I want answers. I have finally managed to get an appointment with the pain clinic physio but even that is 6 weeks away. I have had to buy an electric bike to take my daughter to school because I can't manage the 5 minute walk and sign up as disabled. I am desperate.
I have been reading about Iliopsoas Syndrome, has anyone heard of this?
If I beg the GP is it possible to get a quick mri scan? or do I resort to A&E? If it is from my cesarean how do I prove it? Would the pain travel up to my spine as well as down my leg? Any ideas please??