12 weekers - letters

[Emma_82]

Any one had one yet? I thought they would out quite quickly but I've had nothing so far.

[fionac66]

Hi Emma ... some of the hospitals have contacted their patients and some have been so overwhelmed with Covid-19 patients they have been unable to do this.

We now are not expecting all PCD patients to necessarily receive the letter, but even if they all did, we can pretty much guess the contents by now: stay at home for 12 weeks and follow the government guidelines for the most vulnerable groups.

There is a statement that has been compiled by all four centres which is available on our website to read. This has been written by the doctors across the specialist PCD teams and applies to all adults and children with PCD: pcdsupport.org.uk/covid-19-.... The vulnerable are expected to remain indoors for at least 12 weeks but those in the same household are advised to practise social distancing extremely carefully, so it should mean you are still able to go out and get things on your behalf. If you are also affected by something that makes you vulnerable, you could register for support on the government website.

If you need any specific advice it is best to contact your Clinical Nurse Specialist. Alternatively you can contact us directly to the email [e-mail].

Good luck and stay safe.

[Chrissie82]

Hi Emma, I spoke to my GP yesterday and she basically confirmed what Fiona has already said, it seems like not everyone will receive a letter.