pbc etc

[tuppence]

1st pbc,18mths later autoimmune hepatitus,hiatus hernia,oesophegeal stricture.enlarged heart, osteoathritus to base of spine.i feel im falling to bits and only 64.i live in spain so know one else with pbc.please i desperatly need to give and receive support. gastrologist here say apart from pbc and aih others not linked thanks-tuppence

[tinks]

I also have PBC and oesophegeal stricture. These are frequently linked by CREST syndrome. Might be worth checking out although not much they can do!

[tuppence]

tinks,thankyou do you find eating anthing other than a bland diet creats more pain in youre gullet abd how do you deal with gthis

[Cristina_Romania]

As I wrote minutes ago (but somehow managed to delete it :)) ) - Hola, I am a volunteer of the PBC Founcation in Romania and I speak Spanish, if that helps for anything do contact me - [e-mail].

As for the support you need - regarding information or just counselling, do trust the Foundation and its collaborators. You will find pertinent information and a lot of kindness there. All the best :).

[tuppence]

hi Christina,thankyou very much.You are very kind.Do you know if a pbc foundation in Spain.I can get info through pbc association.web site etc.The problem is I know no else with this disease , cant keep boring my friends and fed up with Consultant telling me to be positive when everyone I know think of me as positive and no medic who seems to think any of my symptoms/diseases are linked.Ive started to think maybe Im being lazy and that is all in my head.Thankyou again and sorry for going on.Tuppence

[Cristina_Romania]

Don't worry :). Talk to The PBC Foundation, do not despair and trust that you get really get help, information and support. If I can be of any help, language-wise or else, let me know.

[tuppence]

a big thankyou - tupence

[zipitydoo]

Feel free to post on here anytime and I am sure one of us will soon be around to post back. i think its great that we can talk to others that have the same problems and understand.