Hey, I havent been on here in some time and i thought i would share my recent changes.
So i got diagnosed in 2011, i take 1x 250mg or urso twice daily and my results have continued to improve, my bloods with the exception of one are within normal ranges :O)
My last visit with the liver nurse was October, she told me their very happy with my results and to try and lead a normal life and everything in moderation. I realised that she was right and for the sake of my daughter, husband and myself, enough was enough i am going to try and forget as much as i can abt this blasted illness rather waking up every morning feeling shattred and wondering how many of my bones were going to ache today.
I had to go to counselling when i first got diagnosed because of the shock of the diagnosis and the constant worry that i wasnt going to be well enough to look after my 3 yr old (who at the time was 1) and the why me???
I have suffered with the tiredness terribly, i rarely sleep well, i work part time and run around after my toddler i also suffer with confusion, my memory is very qustionable and on bad days my fingers and hips hurt. I thought there was no way that i was going to have the energy to go to the gym but i was so low anything was worth a tyr, i joined for a month initailly. I can honestly say its one of the best decisions ive made not only do i feel stronger (which is a lovely feeling) i feel more in control of my body than this illness, i feel more confident and everytime i leave the gym i feel a sense of achievement. I aim to go twice a week with one yoga session in between, some weeks i dont manage to go at all and others 3 times. I guess i have learnt to realise the types of tiredness. I eat plenty of carbs every hour or two to keep my energy levels up and sometimes i walk out of there on top of the world when an hour before i could barely get out of bed.
I realise the gym isnt for everyone and if someone told me a few months ago i would enjoy going to the gym i would have laughed at them but i think that its good to share postive changes. With the positve changes i have made with the gym its spurred me on to go back to adult education and i am currently looking for a 2/3 year couselling course so hopefully one day i can help others.
Written by
Lisa30
To view profiles and participate in discussions please or .
I totally agree with you about the physical and psychological benefits of going to the gym. I admire you for making the choice to be proactive rather than reactive, and to not view yourself as a victim. I have had a gym membership, but have been lazy about going. You have, by what you wrote, motivated me to get off my butt and get to the gym. I vow to go at least 3 times a week. Thank you Judi
I go to the gym five times a week (1 hour each day) and walk at least 1 hour a day 7 days a week. I had been on 2 x 500mg of Urso daily and have dropped to 1 x 250 with all my blood work being stable. With the exception of some joint pain and a loss of memory, which might be the result of being 60 I seem to be in good shape. I have two liver specialists, both of whom feel that the exercise routine that I have has helped me slow down the progression of my PBC.
Glad to see these gym related comments as I have been worrying about exercise. I go to an intensive circuit training group 3x weekly and a zumba class 1-2x weekly. I asked a consultant about this and he said that any exercise should be moderate as the liver needs to rest. I have to make an enormous effort to get there sometimes as classes start at 9am and I rarelty get a good night's sleep. I feel much better coming out than I do coming in! I am 66 and was diagnosed in 1994. Mostly I try and forget about it despite numerous anoying and sometimes painful symptoms for which no explanation is ever found!
Hi there, I exercise at home with a DVD (30 minute lo impact) every other day and go fora 45 minute walk most days I feel sluggish if I miss out exercise. I have been thinking about attending a gym, have been in the past andfind it totally boring but might give it another go. I suffer with weight problems and alway have done. I know I over eat bu I do eat fairl healthy. white meat, fish, salads and veg Unfortunately I do have a sweet tooth after meals.
thank you for all your comments its lovely to hear from like minded people. I hope your all doing well? Unfortunately I haven't been to the gym for two weeks. I started over doing it going 5 times a week, now I've got run down and caught a cold. I am going on Thursday regardless, I am sure i feel worse for not going.
I am interested in hearing from you guys if you have changed your diet since being diagnosed or quit alcohol altogether?
I don't deny myself any food, we eat quite healthy, i am aware and limit, fried food, pastry etc. I also drink wine on social occasion's and have the odd glass every now and then at home. I am keen to gain some muscle and know increasing protein in your diet is good for this but not sure how it effects the liver, does anyone know anything about this?
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.