Sorry for the late post. I had an early morning appointment almost an hour away - fighting traffic and the rain made for a nerve wracking drive.
But, you know what we need to keep it all in perspective. We all have daily irritations, unforeseen lab values, family disputes, unrelenting itching or constant fatigue - even sadness that seems unending. Most of us may have been experiencing sadness, anger, or disbelief, or even denial over our diagnosis of PBC. We all tend to internalize those feelings that seem we will never come to any peace with. How do we deal with any of it?
It is so important to know you are never alone with any of these feelings. Don't feel no one understands. I know many of you may have families, friends, or colleagues who truly don't 'get it' in the least. But... here we do understand what words like itching or fatigue truly mean. We can be empathetic. They can only be sympathetic, There is such a difference, isn't there?!
It's important to stay connected. Whether it's with a support group or joining The PBC Foundation - both hopefully - we have to be surrounded by folks who can give us the information and the support we all need. I encourage all of you to join The PBC Foundation. Having been affiliated with this amazing group of passionate people whose sole purpose is to inform, support and educate, they would make you right at home.
Just remember that may be what you ask or what you post can be what someone else isn't able to voice for themselves. You can be their voice!
ESA - Work related group need advice to be move onto the support group please
Is everyone a member of the PBC Foundation UK
Itching with normal bilirubin blood levels? 
Intense non-stop itching
