Thursday's Thoughts

[DonnaBoll]

How do you honestly feel you are doing (mentally or physically) since your diagnosis?I hope several of you will share your feelings about this. In some ways, we can help each other so often just by truly understanding.

[mel16]

hi

Just find it so unbelievable that I was diagnosed with pbc. It was found on a routine blood test. Now I seem to be getting unusual itch especially at night. Like a crawling feeling or occasional sting? Was diagnosed about 12 years ago and on urso

[DonnaBoll Administrator in reply to mel16]

Being told you have a chronic disease with no known cure that you did nothing to cause - it is a lot to take in, I know in my own experience I felt this way too. That is why many will be beginning to lobby for LFT's be part of our routine annual physical or well woman check up. The itching, unfortunately, can happen anytime. Mine was always worse at night. Have your numbers, then, responded to taking the Urso? As far as the itching, trial and error is often what we have to do to find something that brings some relief. What seems to help you? If you live in the states, many find CeraVe lotion helpful.

[mel16 in reply to DonnaBoll]

Thanks for the reply. Yes, the consultant is happy with my alp around 140. Just get on with life !

[DonnaBoll Administrator in reply to mel16]

He (or she) is absolutely right!!! we all owe it to ourselves to live our best life. 140 is a great number. Sounds like you are doing well mentally as well as physically. Please reach out here if there is anything we can do for you. Posts about how life is going are always welcome here. I think it is encouraging, for many who are still struggling with the diagnosis, to know there is a whole life to be lived!