PBC and Polymyalgia rheumatica: Does anyone... - PBC Foundation

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PBC and Polymyalgia rheumatica

Gioielli profile image
11 Replies

Does anyone on here suffer from both?

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Gioielli profile image
Gioielli
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11 Replies
teddybear7 profile image
teddybear7

Hi I do amongst other things, how can I help? X

Gioielli5 profile image
Gioielli5 in reply to teddybear7

Just wondered if this was common. Thanks for your response.

CeeCee101 profile image
CeeCee101

I just got diagnosed with overlap rheumatoid arthritis.

DonnaBoll profile image
DonnaBollAdministrator in reply to CeeCee101

This is a very common autoimmune disease that often accompanies PBC - also Sjogrens and osteoarthritis. What treatment are you receiving for it?

CeeCee101 profile image
CeeCee101 in reply to DonnaBoll

tried Plaquenil, which is common for Sjogren’s as well. Too many bad side effects. Low dose prednisone now. We’re restricted on some drugs (methodexrate) due to liver damage.

DonnaBoll profile image
DonnaBollAdministrator in reply to CeeCee101

That liver disease always eliminates several drugs. Hope you get some relief. Let us know

DonnaBoll profile image
DonnaBollAdministrator

I am not familiar with this. I'm posting some information about it for everyone to help understand what it is. mayoclinic.org/diseases-con...

CeeCee101 profile image
CeeCee101

I started this thread awhile ago here for users that have overlap, all self reported

healthunlocked.com/pbc-foun...

RuthieT profile image
RuthieT

Yes, I have both. PMR was diagnosed first and was probably what led to the PBC, which was up until recently diagnosed as inflammatory hepatitis.

mtrafter profile image
mtrafter

I have both. PBC first, diagnosed 15yrs agoand managed extremely well on Ursofalk its a breeze compared to my journey with. PMR diagnosed 5yrs ago !! Lots of side effects from the medications.

CeeCee101 profile image
CeeCee101 in reply to mtrafter

What are you taking?

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