systemic scleroderma

[DebatDG9]

Autoimmune diseases - bit of a slippery slope - a paediatrician friend once said when I shared my 4th autoimmune diagnosis. Now I fear I’ve got another to add to the list! Does anyone also have Systemic Scleroderma?

[Lisa1150]

yes, I also have scleroderma. ☹️

[DebatDG9 in reply to Lisa1150]

Hi Lisa

I wonder how many with PBC also have scleroderma?

[Lisa1150 in reply to DebatDG9]

Studies show about 5% of people with Limited Scleroderma develop PBC...

[gwillistexas]

I have limited but my rheumatologist ordered a scan of my heart and lungs in the beginning to make sure there was no hardening. I’m sure it will be repeated at some point. I also have Raynauds.

[DebatDG9 in reply to gwillistexas]

Hi Gail

Yes I have Raynaud’s already diagnosed. Are you taking any meds for scleroderma?

Deb

[gwillistexas in reply to DebatDG9]

no but my Raynauds was worse this winter. He did a lab to see if schleroderma has worsened. He said it had because of the lab results and the fact my Raynauds has worsened . Wanted to put me in a med to help circulation but I wouldn’t take it.

[gwillistexas in reply to DebatDG9]

do you take medication for yours?

[DebatDG9]

Nefedipine when it’s really cold but worried about effect on liver. Clinical pharmacist prescribed it but want to discuss with GP before next winter

[roseter]

Yes I also have systemic scleroderma and CREST which includes Raynauds !

[gwillistexas in reply to roseter]

crest here as well.

[Hocktastic]

I have localised scleroderma

[Lu11]

I have Raynauds

[skdavis59]

I have Raynaud’s and tested positive for scleroderma; my rheumatologist thought since I have no symptoms from scleroderma, that it is probably elevated due to my other autoimmune diseases. I have PBC/AIH - diagnosed 2011.