Sildenafil for Secondary Raynaud's

[magria]

I have just been prescribed Sildenafil - hopefully to releive and heal my destroyed fingers.

I would be most grateful for any advice from those who have also been prescribed this - some of the side effects seem really scarey!

Thank you to all who respond

[gwillistexas]

I have Raynauds also. My rheumatologist didn’t say if it is primary or secondary. I know it only affects my fingers. I’m guessing it is secondary because I also have connective tissue disorder. So far no medication. Is a terrible thing to have. How did it damage your fingers? My rheumatologist always checks circulation in my fingers.

[magria in reply to gwillistexas]

Hi gwillitexas

Thanks for your message.

I hope, very much, that your Raynaud's is primary, (so there should be no damage to your fingers.)

It is difficult to describe what has happened to my fingers. Fortunately, I do not have ulcers. Six of my digits now remain with chronic paronychia - painful. swollen nail folds etc . Sadly, I do not think I shall have proper nails again , they are just a deformed mess that does not grow. BUT I can now feel my fingers - and they are no longer strange swollen lollipops. So that's positive I AM making progress. And there are some amazing gloves out there!

Take care. Best Wishes.

[gwillistexas in reply to magria]

oh that must be miserable for you. I only have problems in cold weather and dread going to the grocery store. I usually come out with a few white fingers that will turn purple if I don’t get them warm fast. I literally stuck my fingers in the vent to get warmth on them. It’s scary because I know if we don’t get the circulation back quick, we can have sores then gangrene. I hope you continue improving with the help of the medication. Wishes for the best.

[Chattygirl65]

Hi Magria

I have recently been prescribed Sildenafil 25mg. I know it is early days for you but can I ask how it is going and are you having any side effects.

Thanks

[magria in reply to Chattygirl65]

Hi Chattygirl

I was unable to obtain Sidenafil for several months.

When it became available I began taking it.

It was effective but made me very light headed.

Then my husband became seriously unwell and needed, and still needs, to be taken to hospital etc. on frequent occasions. Also, we live in a rural area, without any public transport, and with him being unwell, I need to able to drive. The information leaflet with the Sidenafil warns that you should not drive if one of the side effects is dizzyness etc. So I stopped taking it.

I hope Sildenafil works for you and that you are managing during these winter months.

Best wishes

[Chattygirl65 in reply to magria]

Thank you Magria. I hope your husband makes a full recovery from his illness.

Best regards