Mornings are the worst: Hello friends. PBS... - PBC Foundation

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Mornings are the worst

TanGram profile image
3 Replies

Hello friends. PBS diagnosed about 18 months ago. Things are good. Numbers almost all good. I seem to suffer the fatigue the worse in the mornings. Like really bad. Then I'm good the rest of the day. Anyone else get "first thing in the morning" fatigue so severe?

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TanGram profile image
TanGram
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3 Replies
Starmoon01 profile image
Starmoon01

I was diagnosed in 2019 and have found the past year has been the hardest with fatigue. Mornings are definitely difficult to the point it’s affecting my work and every day life. I’m finding it a real struggle, sorry I can’t give you any advise other than the routine - eat well, rest when u need to ect

gillrich profile image
gillrich

Hi join the pbc foundation in UK free to join but donations very much appreciated. Pbcfoundation.org.uk is the website read up am d think about joining for all up to date a d accurate advice . I've had pbc diagnosis for 19 years x

Hils67 profile image
Hils67

I’m the same as Starmoon01 mornings are terrible for me. I have to push myself to get out of bed most mornings. Sometimes I don’t feel normal until mid afternoon. I was diagnosed in 2015 and was very early stages of PBC. My LFTs have never been normal and this last year they’ve been on an upward trend, with alp hovering just under 200…but no one seems bothered. My drs say they’re stable, but I don’t feel stable. My itch is getting worse, sleep is terrible which impacts my fatigue. I’ve dropped from 5 days to 4 at work but the last 6 months I’ve not worked a full week due to being either off sick completely or on phased hours.

Dorry, I’m not much help, but to answer your question…yes my fatigue is worse in the mornings. Especially if I haven’t had a good nights sleep. Xx

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