PBC Fatigue and AIP Diet

[SuperJo]

Have you ever heard of the AIP diet? About 10 days on the AIP diet (Dr. Amy Myers) and the fatigue started to lift. I have not felt that amount of energy in years. Very restrictive but I actually feel that I have a functioning body now, seriously. Thought I ate well before but was eating all the wrong things for autoimmune conditions. Fibroscan went down 2.5 kpa so liver is happier too. Would not have believed it unless I did it so if the fatigue is making life not fun give it a try. Good Luck!

[Ktltel]

😊👏👏👏👏👏👏👏 So great to hear something is working for some of us.

I've got to really watch Iron intake. Wonder if it'll help me? ❤❤

Happy dance for you! ❤

Stella

[periwinkle88]

I follow the AIP diet, with a few extra restrictions (foods I react to), as well as a few additional foods that I don't seem to have any trouble with. I was diagnosed almost 8 years ago at stage 0, and just had a fibroscan result of 4.5 a couple weeks ago that puts me at stage 0-1 for fibrosis - so I'm still very early stage with PBC. I feel like I've remained stable because of the autoimmune/anti-inflammatory diet. Good for you for starting it, SuperJo! It gets easier once you've been at it for a while - and well worth the effort.

[Sona_akb in reply to periwinkle88]

Can I ask what is that anti autoimmune diet? Can you please guide me about it?

[SuperJo in reply to Sona_akb]

Hi. It is an eating plan that eliminates inflammation causing foods for a period of time and sometimes you can add foods back after the elimination period. The interesting thing for me was that I thought I was eating very healthy but I was eating things that just don’t work for me. I was eating nightshade veggies like peppers and tomatoes, nuts and seeds everyday. After changing my diet around I started to feel like my body was actually working. I used to feel like I was running on 3 cylinders and limping along. Energy was non existent and life was kind of overwhelming outside my narrow existence. I started this meal plan about 6 months after diagnosis and starting Urso. I had hoped Urso would help the fatigue but it made me feel like I was always just about to get a cold. I knew that there had to be more I could do for my liver and my body. So I found Dr Amy Myers and started reading. She explains the reasoning behind the elimination of the food groups so that you can understand. It made sense to me and when I started to feel better that was the proof. I wish you great success with whatever you are trying and I hope you are feeling good. 💐

[2bear]

Hi terriifc. How find out more info on this diet ? Also have u heard if dr Joel Fuhrman ?

[SuperJo in reply to 2bear]

I read the book by Dr. Amy Myers. She also had a cookbook that is pretty good. I took ideas from there and found local places for buying things like collagen and supplements. Read another book by Dr. Jonn Matsen The secrets to great health. Lots of great info about liver in there. Good Luck with your search and learning. Whatever we can do to take the best care of ourselves is so important!

[ninjagirlwebb in reply to 2bear]

I have read most of Dr Fuhrman’s books & he gives very sensible advice.

[2bear in reply to ninjagirlwebb]

Yes hi there - he does. Do u follow his protocol. Not easy but makes sense ..

[ninjagirlwebb in reply to 2bear]

I just eat clean. Stay away from processed foods. Eat lots of fruits & veggies. Eat mostly fish & lean meats. I also eat the things I enjoy every now & then. I have to have balance.

[Phoenixv]

Hello not heard of this diet where do I find details thanks

[uandisharing]

Now I have. I'm thinking I do not like it!! I'd have to be put in the hospital to follow that diet. If you can do it. Good for you!! I'm in awe.

[Michi1]

I eat a similar diet and have also had good results.

[JaneIng]

I tried it and it is very hard. One caution: AIP food list includes a lot of high oxalate food such as spinach, beets, sweet potatoes, carrots, etc. When I was on AIP, I ate a lot of them and caused calcium oxalate in the urine, a precursor of kidney stone.

Glad you have such a wonderful result.

--Jane

[2bear in reply to JaneIng]

Yes I have been told did years and now to watch that oxylate count. .. anybody see Medical a medium -

Liver Rescue? I know it is a controversy but have a look and see what u think. No not a physician by the way ...

[JaneIng in reply to 2bear]

Is it the book written by Anthony Williams? I have not read it but it has raving reviews. Have you tried it?

[Ottley3]

Great to hear! I will google but i did want to quickly ask if you are allowed nuts on this diet? I have eliminated dairy and feeling much better. I like to use calcium fortified almond milk but i know some anti inflammatory diets recommend coconut milk if anything. Thanks in advance and cheers to your continued good health.

[SuperJo in reply to Ottley3]

Nuts are out in this diet. I used to have nuts everyday so this was a large change. Coconut milk is allowed and I don’t teally notice the change in consistency or flavour. Best of luck on your food adventures!

[Sona_akb]

I don’t know this diet will google it, is it useful for skinny patients who don’t want to lose weight?

[Wass71]

I have zero faith in any fad diet, they are designed and marketed to make vulnerable people who are desperate for better health waste their money.

Any registered dietitian would tell you its not good to cut out major food groups without medical testing and advise to do so.

Most people feel better initially when they do these diets because you are focusing on what you're eating, you could do the same by following the NHS england healthy plate diet which shows the proportions of each food group.

Most fad diets are a way of selling magazines and lifestyle products.

Very few people have genuine food allergies, we've been eating gluten for thousands of years and our bodies are perfectly capable of tolerating it, unless you are in the one percent that have celiac disease.

Just eat as healthy as you can, cook from scratch, eat slowly with all you focus on the food, not in front of TV ( mindless eating). Then exercise to your own ability, avoid supplements/ vitamins, unless prescribed or advised by your Dr. Definitely stay away from magic potions snake oil sales people. That is what the Pbc foundation recommends.

Just my opinion, but based on facts, not some internet guru!!

Stay well

[JWJD]

Since I was diagnosed last year, I've been experimenting with different diets. This is the only one I've seen improve my LFT's. It's tough to stick to, but when I do my LFT's go down and I have great energy. If I cheat, my LFT's go up and the fatigue hits immediately. It helps to do food prep in advance so I always have a healthy option available. Sarah Ballantyne, PhD is another great resource.

[SuperJo in reply to JWJD]

Thank you for posting your experience with AIP. That is also my experience: LFT numbers went down, energy up and happier mood. I wish you continued success and a healthy liver!

I use Sarah Ballantyne’s Vital Proteins collagen and I enjoy her web page and blog entries. Continued success to you my friend.

To Wass71 - read Dr Amy Myers book. She’s a medical dr and a natural medicine dr. It’s not a fad diet and her experience has helped me immensely. So don’t knock it until you’ve read it.

[Sachin1234]

Enjoy the food till your liver can digest well..everything moderation is always good idea..🤗🙏