Bezafibrate : Does anyone know if Bezafibrate... - PBC Foundation

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Bezafibrate

Wocket profile image
14 Replies

Does anyone know if Bezafibrate can cause problems with your kidneys? Also if you can just stop it or if you need to gradually come off?

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Wocket profile image
Wocket
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14 Replies
butterflyEi profile image
butterflyEi

Good question @Wocket. Can I suggest that you send it to linda@pbcfoundation.org.uk this morning. Best to give as much information as you can.

Professor Jones is the guest speaker on their Thursday Q&A. Link to them can be found on their web site for the click meeting or join Facebook Live at 2 p.m. this afternoon.

best wishes

Wocket profile image
Wocket in reply to butterflyEi

Thanks butterflyEi have now done so. My GP seems to think I’m old so it doesn’t matter and I’m only 59 😭

butterflyEi profile image
butterflyEi in reply to Wocket

this makes me very sad, only one GP at my surgery over the last 3-4 years has shown any interest and she was newly qualified. I don't often trouble my surgery when I do I get the same feeling but I have done for quite some time. Anyway I hope you can listen in and hear your answer but if not the sessions are recorded and are available later on Facebook and the PBC Foundation YouTube channel. I am hoping to listen in today so we will both learn something I am sure. best wishes

Wocket profile image
Wocket in reply to butterflyEi

My email to Linda just got bounced back so don’t know how to get the question to the profesor. Any ideas how I can contact because I couldn’t find an email. Cheers

butterflyEi profile image
butterflyEi in reply to Wocket

try info@pbcfoundation.org.uk

maybe I got the first email address wrong, sorry. I will try to find out.

Wocket profile image
Wocket in reply to butterflyEi

I’ve been looking on the web site but I can’t find an email. Mind you I can be a bit daft. No need to be sorry 😀

Wocket profile image
Wocket in reply to butterflyEi

Fingers crossed for this email. You are clever I couldn’t find any email. Perhaps I really am getting old

butterflyEi profile image
butterflyEi in reply to Wocket

😂😊😂 you gotta catch me first!

butterflyEi profile image
butterflyEi

if you have a further problem I can copy and paste your original post and send it in on your behalf.

Wocket profile image
Wocket in reply to butterflyEi

Thanks ButterflyEi, Your email address was nearly right after the .org it’s got .uk so Linda now has the question. Thanks for all your help x

amt50 profile image
amt50

Hi, Ive been on Bezefibrate for15 months, game changer for me as itch was unbearable and I was ready to end it all. Yes, this drug can impact your kidneys you need blood tests to monitor. I had bloods after 2 weeks, 4 weeks then monthly for three months. I think this may have been because when I took Ramipril this sent my kidney levels sky high

Wocket profile image
Wocket in reply to amt50

They were not monitoring me and I now have stage 3 Kidney disease. I have now been taken off it. I was given it because I am a partial responder to Urso and it got my numbers into the normal bracket.

amt50 profile image
amt50 in reply to Wocket

My numbers are back in normal, I was only prescribed this due to the terrible itching I had. Hope you find something that works for you

Wocket profile image
Wocket in reply to amt50

Really glad you have got your itching under control luckily I don’t get itching very often but when I do it drives me mad.

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