Hello all, advise please : Hello all... - PBC Foundation

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Hello all, advise please

Geordielasstx profile image
12 Replies

Hello all,

Question: does anyone else have chronic sore throats/allergies and sore mouth salivary glands? My gums are also swollen and having to have deep cleaning soon. Never had this problem before.

Ive been on antibiotics but keeps coming back, honestly fed up of never feeling well.

Oh well I keep smiling, hugs and love to all.

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Geordielasstx profile image
Geordielasstx
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12 Replies
mel16 profile image
mel16

HiAsk about lichen planus regarding your gums. When you have one autoimmune condition others can follow. I started with a red line around my front tooth and soon rest of gums became red. Ask dentist next time you visit

Antwerp profile image
Antwerp

If you have pbc you also have a higher chance to have sjörgens too...

butterflyEi profile image
butterflyEi

As at Antwerp says those of us with PBC have a tendancy towards Sicca Syndrome or Sjorgren's which might be adding to your problems. I had a deep clean in 2020 the gums felt a bit tender for a while after but soon recovered. Have you had any blood tests to look for anything else? As mel16 suggests other auto immune conditions can be involved.

Nellies47 profile image
Nellies47 in reply to butterflyEi

Hi.What doctor diagnose sjorgrens. Thank you

butterflyEi profile image
butterflyEi in reply to Nellies47

Normally a rheumatologist

Nellies47 profile image
Nellies47 in reply to butterflyEi

Thanks

gillrich profile image
gillrich

If you have pbc contact the pbc foundation and become a member so much accurate and up to date info all free(donations if you can) and at 2 pm on thurs you could ask a top pbc consultant about you mouth and sore throat . I have pbc and sjogrens . Dentist good consultant even better . There are many other prescribed medicines but alwayas get bloods done. Take care

recipes profile image
recipes in reply to gillrich

Hi gillrich , I read where you said you also have sjogrens also. I have been wondering if I also might have sjogrens because for about 3 years now every so often my ears will hurt and at that time inside my nose will feel very dry burning thob in cheek bones and I will run a low grade of fever and the fever makes me feel bad this will last about 1 to 2 days and it will go away without going to dr. or meds. I have had the Dr. to look in my ears when they are hurting but no fever the Dr. said every thing looks fine. could I be having a reaction to urso. I haven't seen the gastro dr. for over a year because of covid but I have an app. in Oct.

Nellies47 profile image
Nellies47 in reply to recipes

Hi.I have sore ears and sore mouth on/off for last few weeks. My gpchecked ears said all ok. So annoying the pain can be terrible.

recipes profile image
recipes in reply to Nellies47

yes the pain is bad. Hope you don't start running some fever like I have. good luck

Nellies47 profile image
Nellies47 in reply to recipes

Hope not, hope you'll be ok

gillrich profile image
gillrich in reply to recipes

I had blocked saliva glands so had antibiotics had an scan then saw a consultant all part of sjogrens for me have to massage cheek near ear and just below ear and drink lots of water little they can really do for us luckily only had this oncecc so far !!

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