Hi, I'm newly diagnosed bit scared and a little worried about this, but it's good to here that it can have a positive outcome. Merry Christmas and a brilliant 2016.
Leighton56 being told you have PBC (especially when you have never heard of it before as none of us had) is a bit of a shock (understatement of the week) so being a little worried is good! There are thousands of PBC survivors on here, each has their own story, itching is a big one, my itching was not my big one, Hepatic Encephalopathy was mine, but I managed to survive (and even accept and almost enjoyed) this issue.... a positive outlook and a great supportive family helped me, for those without a supportive immediate family, we are all here for them, this forum is a place where you can say what you like and not be judged. there is also a mass of experience out here, more than almost any G.P. !! (some of whom do lack experience in this rare condition).
Thanks, it has helped knowing at long last what is wrong with me as my memory is terrible most of the time and also the tiredness is a problem, I don't know how long I have had PBC, but it lost me my job and haven't worked since. I have started to put couping mechanism (my spelling is also bad) in to assist when thing go really wonky. Just have to make the best of it I think.
It's also helpful to find others that have the experience to help me and for which I am grateful.
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