I have tried to send this post twice and it has some how not been sent. I am so frustrated right now but I am desperate to know if anyone else has been prescribed this drug for lowering their ALP levels? The drug is called Bezafibate!
The information sheet inside the box states that people with liver disease should not take it. It also states that if you have an underactive thyroid you should speak to your doctor before taking it. And under side affects it says if you should develop an obstructive liver disease whilst taking the drug go straight to the nearest emergency room!!! I don't get it. If PBC ( blocking of the bile ducts is not classed as an Obstructive liver disease then what is it classed as. I know that PBC comes under the Autoimmune desease catagory but surely it's an Obstructive Liver desease aswell? Am I going mad or does the fact that my specialist even contemplating putting me on this drug make sense to anyone out there. Please I would be very interested to hear from anyone else who has PBC and has been prescribed this drug and if you took it and what was the outcome?
Anyway, I hope that this post will get to the right place this time cos it is nearly 2am and I am exhausted . Hope to hear from someone soon,
Good night my fellow PBC sufferers,